| || |
BETA BUDDIES The Game
| MONDAY, MARCH 6, 2017
5:18 am - no signal on his CGM. I should check him. If he is high, there is plenty of time to correct; a little over 5 hours. I was careful not to wake him. He needs his sleep; especially today. I lifted his ring finger and pressed the lancing device firm to his finger tip, hoping to avoid the need for multiple pokes to get a blood drop. He was 386.
BETA BUDDIES I'm a Checker, but not a Mice Checker.Yo
| MONDAY, FEBRUARY 6, 2017
A few days ago. Pre-post note: We are currently besieged by mice. Traps are set in the basement and the main level of our home. The words "GI BUG" scare the BeJeezus outta even the most resilient, calm, cool, and collected of d' rents. Joe currently has one. I was up at 3 am. checking a blood glucose, ketones, and then bolusing insulin. Me: "What?"
BETA BUDDIES Maturi-D'
| FRIDAY, FEBRUARY 3, 2017
Over the years, I've tried to teach him the proper way to do things. A healthy diet was discussed and modeled. he did his own thing, choosing to eat from the "Brown and Beige Club" for years - chips, bread, mac and cheese, chips, crackers. Now, lean meats and vegetables are consumed regularly. Rotating pump sites, took years; like 9 to be exact.
BETA BUDDIES Growin' Up D'
| WEDNESDAY, FEBRUARY 1, 2017
Just like when you questioned their ability to one day pee and poo on the potty, to feed themselves using a utensil, or to tie a shoelace, a parent of a child with t1d questions the ability of their child to perform the tasks involved in managing t1d, independently. The tasks are one thing. They are fairly straight forward. About a week ago.
BETA BUDDIES Feelin' "Got"
| FRIDAY, JANUARY 27, 2017
I'm not sure if isolation quite describes it. I suppose it is a feeling of loneliness and of feeling misunderstood. Today, I didn't feel that way. Today, I felt "got". Today, my eyes teared up as I read an email from one of Joe's teachers. This email was not in response to any recent issues. It was an unexpected email of praise for Joe.
BETA BUDDIES Chromebook Confiscation
| FRIDAY, JANUARY 20, 2017
NOTE: Joe does not have a Chromebook Confiscation history. I knew, over the years, we'd run into difficulties of not being understood. We all deal with that in our day-in-the-life. limits his access further.' My voice was measured. My temper in check. The blood sugar checking, the carb counting, and the insulin dosing are one thing. Joe promised.
BETA BUDDIES Night Shift
| TUESDAY, JANUARY 17, 2017
At least he piled up the juice boxes neatly. The above is the scene that greeted me, as I went in to wake him a few weeks ago. Joe, the juices are not for snacking on.' 'I I was low in the middle of the night.' Three times?!' 'Yes.' Over the years, people have asked me. When will Joe start taking care of his diabetes during the night?'
BETA BUDDIES School Nurse Call
| MONDAY, JANUARY 16, 2017
At about 3pm, the end of the school day, a few days ago. I received a call from Joe's school nurse. She notified me of a recent low; he treated. He left school without re-checking his blood glucose; he didn't want to miss his ride home. your telling me to call him and make sure he makes it home alive (laughter). He knows what to do. I called him.
BETA BUDDIES Choke It Down
| MONDAY, JANUARY 16, 2017
A couple of weeks ago, after a hockey game, Joe bought an apple strudel-y muffin from the rink snack bar. He was going to eat it on our 30 minute trip home. 'My My number is 223.60 grams.I'm m not going to correct, but will cover the muffin.' unit bolus was then cranking into his subcutaneous tissue to cover this muffin. which he hadn't yet tasted.
BETA BUDDIES Meatloaf
| TUESDAY, JANUARY 3, 2017
Joe cut this meatloaf-loaf into thirds this morning. Meatloaf pic added for comic relief. His plan; take a 1/3 of the loaf to school for lunch each day over the next few days. We no longer use the " daily log ". We transitioned to a scrap of paper for carb counts; he says he doesn't need it, but it gives me some sense of security.
BETA BUDDIES D'straction
| MONDAY, JANUARY 2, 2017
It distracts him multiple times a day. Prior to eating a blood glucose is checked, carbs are counted, insulin is dispensed. It distracts him nightly, as he hopes to wake the next morning. It distracts him when he needs to sip juice, as he sleeps. It distracts him when he wants to be active. Does he complain about this "distraction"? Rarely. Never.
BETA BUDDIES There's a New Woodchuck in Town
| WEDNESDAY, AUGUST 3, 2016
As many of you long time followers know, we have used the Eli Lilly bag to house Joe's diabetes supplies over the years. This bag has been affectionately called "Woodchuck". Why name it? You may ask. Well, would you rather yell "get the diabetes supply bag!" three words and boring) OR would you rather yell "get Woodchuck!" (one Anyways.
BETA BUDDIES Uh.Yeah.
| MONDAY, AUGUST 1, 2016
In the hot tub, last night. Dave and I were talking about Joe's Dexcom. We are currently waiting for a new receiver, as our last one has lost it's volume. It seems it is plenty loud to alert for a high, but is barely buzzing for a low. When our Dexcom has adequate volume, Dave and I will take turns manning it at night. I eventually wake up. Me: "Uh.it
BETA BUDDIES 1:37 am
| FRIDAY, JULY 29, 2016
In the fog of my blissful sleep, I hear something. It's important. I recognize that as I slumber. I try to remain asleep, but my mind searches for the implications of the sound. It's 1:37 am. My subconscious knows to to be on "high alert". which required a new pump site.and a correction dose of insulin. It's 1:37 am. Joe is low. I catalogue the day.
BETA BUDDIES He's Resilient
| FRIDAY, JULY 29, 2016
Perhaps one of the most difficult things to explain to persons not intimately familiar with t1d is the unpredictability of our day-in-the-life. This week. Joe participated in a power skating camp. The camp was two hours long. It took place from 6:50 to 8:50 pm. Additionally, two Gatorades (60-ish grams CHO) were consumed during the camp.
BETA BUDDIES Anxiety, Courage, Bravery
| WEDNESDAY, JULY 13, 2016
This summer, in particular, I am aware of it. Raising a child with t1d takes courage. This post, in no way is meant to take away from those living with t1d. Persons with t1d are perhaps the most strong, brave, and courageous people I know. I live it. I watch it day in and out. Yes, I know you should not live your life thinking about "what if's".
BETA BUDDIES The Tree
| MONDAY, JULY 11, 2016
Yes, the title has nothing to do with the post. I just loved the photo I took of the area where we waited out the low. Over the past 10 years, diabetes, for the most part, has become routine in the day-to-day, the hour-to-hour, the meal-to-meal, the night-to-night. When it stops Joe from walking, well. even maybe when he was 7 or 8. A few weeks ago.on
BETA BUDDIES Take That Growth Hormone
| SATURDAY, JULY 9, 2016
Growth Hormone is released from the pituitary, which is a part of the brain. Growth hormone counterbalances the effect of insulin on muscle and fat cells. High levels of growth hormone cause resistance to the action of insulin. Basically, this means blood sugar levels will run high during periods of growth. A week.or so, ago. Another 1.7
BETA BUDDIES Life Support Fad
| SATURDAY, MAY 28, 2016
A fad or trend or craze is any form of collective behavior that develops within a culture , a generation or social group and which impulse is followed enthusiastically by a group of people for a finite period of time. More on track. I don't think about it much. They are a part of him; his CGM and his pump. When I see him, I see Joe. Me: "What?"
BETA BUDDIES Not the "Cure" I Would Want for Him
| WEDNESDAY, MAY 25, 2016
Joe ran up to me, as we were leaving his track meet yesterday. An excited "Mom, I just met a man who said he 'used to have diabetes'". I looked directly at Joe."What?" What?" "Yea, Yea, he saw my pump and then told me." My head did a subtle side-to-side shake. My mind then went to the word "whack-a-doodle". Joe, don't believe it. Yes, then yes.
BETA BUDDIES Insulin Reigns Supreme
| THURSDAY, MAY 19, 2016
D' Blog Week: Day 4: I went with the Wildcard of getting physical. Managing diabetes during exercise can be tricky, so share what works for you or your loved one with diabetes and maybe it can help someone else. What do you do when you want to work out, but your blood sugar is lower or higher than you would want? How do you cope with this?
BETA BUDDIES "This Isn't Diabetes 101!" ~ Reyna Maher
| WEDNESDAY, MAY 18, 2016
D' Blog Week: Day 3 : There is an old saying that states "Sticks and stones may break my bones, but words will never hurt me." I'm sure we've all disagreed with this statement at some point, especially when it comes to diabetes. For some, they don't care, others care passionately. The following doesn't happen all to often. Where am I? So, typically.I
BETA BUDDIES Acceptance
| TUESDAY, MAY 17, 2016
Blog Week: Day 2: We think a lot about the physical component of diabetes, but the mental component is just as significant. How does diabetes affect you or your loved one mentally or emotionally? The psycho-social-emotional toll of t1d has never been lost on me. The micro-management of food. The time the care takes. The stares. Absolutely. What?" "I
BETA BUDDIES The Solo Sleepover
| SUNDAY, APRIL 24, 2016
And, there are times I write about the day-in-the-life to let you know you are not alone. And, we did it! We made it through some new situation alive, some-what happy, and with some sorta glucose stability. Words like "trampoline park" and uh. sleepover" scare the bejangels outta even the most seasoned of d'rents. The trampoline park went well.
BETA BUDDIES A Free Meal
| FRIDAY, APRIL 22, 2016
It's one, of many, difficult concepts to explain to those who do not intimately know t1d; the tasks that accompany the simple act of eating. Typically, a blood glucose level should be obtained. The number, if high, should be corrected with insulin. The number, if low, should be treated with fast acting carbs. Outta habit, he went to do a check.
BETA BUDDIES Some Work Is Better Than No Work
| THURSDAY, MARCH 31, 2016
Over the past couple of months, things had been relatively stable in the diabetes department around here. Blood sugars had been within range for the most part; pump settings stagnant. Lows are now plaguing our days and nights. Lows are seeping into Joe's school days. This morning, as we hopped into the car for his 6:45 a.m. high jump practice. "I
BETA BUDDIES A-low-n
| WEDNESDAY, MARCH 30, 2016
As I pulled up, he was sitting on his friend's driveway. His shoes were off. He was alone. He looked pale. There are times I'm not sure what to expect. Sure, experience has given me some ideas. He may be pasty white and shaking. He may be curled up in a ball, moaning and mumbling, as he deals with the low. Or.he Alone. I just wanted to wait."
BETA BUDDIES The End of the Beginning
| MONDAY, MARCH 28, 2016
My time left with them is diminishing. I'm soaking up the family moments with a keen awareness of changes and transitions that will inevitably arrive, in the all too near future. Joe and I had an interesting conversation recently. The conversation was last week; in the car.and yes, you guessed it, on our way home from some sort of hockey.
BETA BUDDIES Eggs-cellent Idea
| SUNDAY, MARCH 27, 2016
"I think I'll take a break from decorating." He was low. Like, 50's low. His demeanor was calm. This low was not a big deal. He recognized and verbalized shaky hands and trying to draw on eggs was a frustrating combo. Living the day-in-the-life with sound judgment. lowprobs. dblog #LOWs holidays
BETA BUDDIES Hopefully Never
| TUESDAY, FEBRUARY 16, 2016
Studies have shown depression symptoms in children and adolescents with type 1 diabetes are nearly double that of the highest estimate of depression in youth in general. Today we were at our quarterly Endocrine appointment. This one started off a bit differently. Joe's questionnaire looked fairly simple. It was a single page. For who?" "The
BETA BUDDIES The Toe Is A No Go
| MONDAY, FEBRUARY 1, 2016
Perhaps I shoulda warned him before doing it. Maybe a little heads-up woulda been the appropriate thing to do? I'm not sure what good toe poking etiquette entails. In hind sight, initializing a toe-poking-protocol on a sleeping subject is probably not the proper procedure. I was headed out for my morning run. Poke toe.maybe he sleeps? Fingers?
BETA BUDDIES Sub Flub
| SATURDAY, JANUARY 30, 2016
"Did it bother you?" "No No mom, I was OK with it. It really wasn't a big deal." A couple of afternoons ago. Joe was sharing about his school day. He had a substitute teacher in one of his classes. His Dexcom started donging off "Meep-Meep-Meep style" indicating a low I presume, from the history of numbers. He didn't appear to be too bothered by it.
BETA BUDDIES Oh YAY! A First!
| WEDNESDAY, JANUARY 13, 2016
In all our years in dealing with diabetes, we haven't encountered this one yet. I knew we were due. I knew someday it would happen. Yesterday. "I I cannot believe I have to use. th.i.s." Joe spoke about it like it was a dirty dish rag. He was disgusted by it. I let him know those little, ity-bity basals of 0.025units/hr gave me peace of mind.
BETA BUDDIES He Needed A Little "Back Up"
| SATURDAY, JANUARY 9, 2016
One of the main reasons I write is so others living with t1d feel a little less alone. While my stories are short, little vignettes of sorts, I hope you get a glimpse of the victories and challenges we face. Not all stories necessarily reflect us in a positive light. This is real. A couple of hours. I was reading. I was reading upstairs in my room.
BETA BUDDIES Sled Dread
| WEDNESDAY, JANUARY 6, 2016
Many of the thoughts are typical of most parents I suppose; except for the low part and the Woodchuck part. Yesterday. I dropped off Joe to go sledding with his friends. The drop-off was about 5 minutes away from our home. It was dusk, soon to be dark. Joe has a history of extreme lows in the cold, while sledding. He's almost 13 now. I got it.
BETA BUDDIES Sleep Drinking Talking
| FRIDAY, JANUARY 1, 2016
Last night.Or shall I say this morning at 1:37am-ish. I'm doing the one-eye, half asleep, orange-juice-dispensing-via-a-straw-maneuver to a sleeping Joe. He sleeps during night sugar dispensing. He chews and drinks in his sleep. Frankly, I kinda sleep through it too. am.but, I'm not. Back to last night. I was holding the straw to his lips.
BETA BUDDIES Conscientious
| THURSDAY, DECEMBER 17, 2015
Yes, he is 12. Yet, it's already on his mind; driving and diabetes. In particular, lows and driving and the impact of those two potentially dangerous things occurring simultaneously. "If If it's a long road trip. like a few hours, I think I'll stop and check every hour. does that sound good?" Yeah, Bud, that sounds like a good plan." "I I know." "You
BETA BUDDIES Pump Chucking
| SUNDAY, DECEMBER 13, 2015
As I picked up the pizza-grease-laden pump ( yes, as in insulin pump ), I outwardly sighed and firmly stated "we are having a 'family moment' here". I may or may not have said something about "losing my $*%#" at some point during this story. I was driving. I was driving like highway speed. Joe was frustrated. His team hosted a Canadian team. Good.
BETA BUDDIES Fair Flu Shot
| FRIDAY, NOVEMBER 27, 2015
She slouched down in the passenger seat; her messy top not bun was getting scrunched up. A few days ago during our car ride to the pediatricians office, mentions of flu mist and flu shots peppered the conversation. Bridget was listening in earnest as Joe talked about live and dead viruses. The dead ones being what he needed, due to his diabetes.
BETA BUDDIES A Small Mention
| WEDNESDAY, NOVEMBER 25, 2015
Earlier in the morning he had played a hockey game. Then he swam. As he approached me from the hotel pool, I knew. The stumbles in his gait gave me the heads-up before the quickly whispered "I feel low" was uttered into my ear, while I stood in the hotel lobby. I tried to get him to sit and check. He wouldn't. As he entered our room, he crumpled.
BETA BUDDIES My REM Cycle
| MONDAY, NOVEMBER 23, 2015
Many, many countless nights this happens to me. The Dexcom alarms integrate into my dreams. They seemlessly become part of my REM sleep cycle. At times, I believe the alarms have continued for 30 minutes, perhaps longer, before I am nudged to wakefulness. Our Backyard/Moon 1:38am , a few nights ago. WOMPP! WOMPP! WOMPP ! WOMPP ! WOMPP! WOMPP! WOMPP!
BETA BUDDIES Not So Easy
| WEDNESDAY, NOVEMBER 18, 2015
Diabetes care is non-negotiable. Joe knows it. If Joe doesn't do his diabetes jobs, checking blood sugars and bolusing, there is a consequence. It is the loss of his phone for the following 24 hours. Some people think this is harsh; like he is being punished for having a disease. Think of it this way, he is a 12 year old with an iphone. Why?”
BETA BUDDIES The Smiley Face Did The Trick
| MONDAY, NOVEMBER 16, 2015
Joe finds it annoying. The questions. The questions of a head pancreas, who is supervising a pancreas in training. It was much easier when I did all of the diabetes care. Did you check?” “Did Did you wash your hands?” What is your number?” What was your number?” “Joe, Joe, check your number?” What is Dexter saying?” What was Dexter saying?”
BETA BUDDIES It
| WEDNESDAY, NOVEMBER 11, 2015
I've changed. It has altered my senses, my thoughts, my heart. Perhaps it has made me a better listener. My ears perk up when I hear the beep from his glucometer. I wonder what number will appear. When the cabinet door is heard creaking open, I know a snack is being searched for. My hearing, my listening, has improved. He has a favorite one to poke.
BETA BUDDIES The Scotch Kind
| TUESDAY, NOVEMBER 10, 2015
I was only in the basement for 25 minutes, working out. I came up to this. An old POD site, oozing blood on our kitchen counters ( makes you want to come over for dinner, doesn't it? ). I look over to Joe, who is manning the POD change. I couldn't find medical tape, so I just used the scotch kind.' Nice. dblog #type 1 diabetes Omnipod
BETA BUDDIES Normally Atypical
| SUNDAY, NOVEMBER 8, 2015
As he clambered through the front door, a brisk and soft spoken 'I feel low' swiftly left his lips. He was 68. It was dark. It was an early evening hour. Type 1 Looks Like Us A few days ago. An hour or so before the above mentioned clambering. I entered the house after a run. In the mudroom, I removed my shoes. His sneakers were nowhere to be seen.
BETA BUDDIES Changing
| THURSDAY, NOVEMBER 5, 2015
The intake questions were directed to Joe. Do you use Apidra in your pump?' 'Yes' Yes' 'Are you on any other medications?' 'No' No' 'Have you been to the hospital for diabetes since your last appointment?' 'Yes' Yes' 'Were you admitted?' 'No.' Have you had your flu shot' 'No, not yet.' When was your last dilated eye exam?' Joe's eyes darted to me.
BETA BUDDIES #Children with Diabetes Halloween Problems
| SATURDAY, OCTOBER 31, 2015
"Mom! I need help with getting the share going.my phone won't work with the Morph Suit!" Joe - as Obama in a red Morph Suit (Halloween 2015) It's the first year I have not gone with him to trick-or-treat. Let me explain something to you. Trick-or-treating is a form of sport to Joe. Thank goodness for the candy, the Dexcom, and the share.
BETA BUDDIES The Use Of the CAPS LOCK Comforted Me
| SUNDAY, OCTOBER 25, 2015
Facilitating independence with diabetes management in the pre-teen years is causing me much anxiety. Joe was at an overnight hockey camp last weekend. Camp involved multiple on-ice sessions, a water park visit, and foods Joe does not typically eat. He spent the night in a condo with 4 of his hockey peers and a "condo" (chaperone) dad.
BETA BUDDIES A GOOD Day!
| MONDAY, AUGUST 5, 2013
"Does he have some Gatorade that he keeps with him?" Hockey camp coach to me.this morning. in response to my informing him that Joe has type 1 diabetes. Ah.well yeah.". ?. I thought this facial expression goes well with the "Ahhh.well yeah." response. Oh man, how I wish managing Joe''s diabetes only entailed some Gatorade. It runs all week.
BETA BUDDIES Patient Portuguese Pancreas Princess
| FRIDAY, AUGUST 2, 2013
There may be a little spittle on your screen if ya try to say the title out loud. Truth, I am Portuguese ( half, from my father''s side ). Truth, Joe''s misguided T-cells forced me into performing as an exogenous pancreas. False, I am not patient. And I am actually a "queen" not a "princess".well, well, my name means "queen" in Spanish. Anyways.
BETA BUDDIES Night.Strip.Trash
| THURSDAY, AUGUST 1, 2013
There was a time that I was a neat night pancreas. ?. See how the used test strips are/were housed in a dish? *?. Oh.yea.If ya get some sort of error message when checking Joe. just grab another strip and re-test.and if that one errors-out.just grab another strip.and so-on.til you get a number." ~ Me to Dave. You see. Nice.
BETA BUDDIES Even While Running A 1/2 Marathon
| TUESDAY, JULY 30, 2013
I checked his blood sugar, fed him, and bolused him. I then set the stove clock to alarm in two hours to remind him to do a blood sugar check. He was to call me with the resulting number. The Marimba ( iPhone default ringtone ) started-in around mile 9. As I picked-up the phone, the runner next to Dave and I said '' ah helllllo. Joe: "Oh.199".
BETA BUDDIES Limitations.
| MONDAY, JULY 29, 2013
As much as Joe likes being free of the "leash", he has, at times, verbalized the pros of the Ping and the cons of the POD. He continues to state that he prefers the POD. However, his frustrations with the switch to the Omnipod have not gone unnoticed by me. My Dear Joe. He rarely complains about the diabetes aspect of his life. I held firm. defeat?
BETA BUDDIES One Third (It's a BIG "Hunk")
| SATURDAY, JULY 27, 2013
In response to "Overkill or Good Diabetes Parenting?". Store hours? I wish. I wish that diabetes management had like store hours or something. Like maybe Joe''s beta cells could "magically" come back to life from 9pm to like 8am. Ya know? Like every night Joe''s glucometer and insulin pump and CGM could put up a "CLOSED" sign. Yea.right.
BETA BUDDIES Laundry Detergent Aisle, Pet Store, Party City?
| FRIDAY, JULY 26, 2013
Last evening. As the Schnauzer Party continued.with the post dinner~leash~tangling~excrement~depositing~and streaming~and~spritzling stroll around the ''hood. ?. I spared you the "depositing, streaming, and spritzling". Me to Dave: "The instant feedback from the DOC is invaluable." ( most recently in reference to pumping insulin with the Omnipod ).
BETA BUDDIES Glad To Do The 4am POD Change?
| THURSDAY, JULY 25, 2013
We are currently having a Schnauzer Party. You see we have Oscar ( salt and pepper ) and Henry ( the black one ) and we are dog sitting Cooper ( the party mix ). A couple of nights ago. on Cooper''s first night at our house. I woke. It was 4am. It was my night off from the blood sugar check. then something was mentioned about the stench.
BETA BUDDIES Insanely Hungry
| WEDNESDAY, JULY 24, 2013
"I think I''m low." ~ Me ( not Joe ). This took place a couple of evenings ago. I had just checked Joe and he was 63. Glucose tablets x 3 were munched and crunched, as we stood in line to await admittance to a Lake Monsters game. I had a headache. I was agitated. I was grumpy. My right inner ear hurt. Joe kept peppering me with "I''m hungrys!"
BETA BUDDIES "Good"?
| MONDAY, JULY 22, 2013
My vision was tunneling, the periphery clouding. I had to hunch myself over a bit in an effort to avoid passing out. I was hoping the lady would stop talking and move on. The lady was an acquaintance-y friend of mine. She is the mother of one of Joe''s school-mates. I had not talked to her in a couple of years. The humidity and heat were elevated.
BETA BUDDIES Dog Food Arm
| SUNDAY, JULY 14, 2013
"Here it is.you can get it in different sizes to wrap up their paws.". Ahhh.it is for my son. he has diabetes. it is to secure his pump site. cheaper than the human stuff.". was at Pet Food Warehouse a few days ago. His arm is now covered in this green polka-dotted dressing and smells like dog food. hours of drills and scrimmaging. He did not.
BETA BUDDIES Drowning Out The Beep
| TUESDAY, JULY 9, 2013
"Just crank up the radio Mom. you know. to drown it out.". Dear Lord the BEEPING. The Lumineers'' Stubborn Love was cranked up a few levels. The beeping was still piercing my tympanic membranes as we headed home from Joe''s first day of Tim Thomas Hockey Camp.yesterday. Once we arrived home, I placed a new POD. He came to me during practice.
BETA BUDDIES I Offered Him Some Baby Oil
| MONDAY, JULY 8, 2013
A week.or while at the local pool. I had met a POD Lady thanks to my friend''s astute eye in detecting diabetes paraphernalia. Chairs and children were immediately navigated in order to make initial contact. I asked the said lady if her "device" was an Omnipod; she confirmed. I shared that my son was going to try out the POD in a few short days.
BETA BUDDIES Retro-BUDDIES: The One Where I Coulda Used A Twist-Top
| THURSDAY, JULY 4, 2013
As we re-mediate Sharkie''s placement in Joe''s mouth and deal with a new Pump and never used site tissue (Joe''s arms), we have experienced our share of LOWS. Now that Starbursts are considered contraband, we have been using juice as "medicine". The straws are a problem (following post depicts the issue ). Joe, Bridge, and Oscar. I am driving.
BETA BUDDIES Losing The "Visible" LEASH
| TUESDAY, JULY 2, 2013
While "Cutting The Cord" has a nice ring to it, I think perhaps they could also name it "Losing The Leash". Joe switched from the Animas Ping to the Omnipod yesterday.?. ?. Originally. six and a half years ago. when I chose a pump, I was making that choice for a three year old. it.didn''t.keep.track.of.it. I understand. u/hour. He filled the POD.
BETA BUDDIES Sharkie
| SATURDAY, JUNE 29, 2013
A couple of mornings ago. I forgot that he was going to be getting them. I remembered, yes.that the Orthodontist said that he may need a few braces on his top teeth to pull the disobedient tooth forward. I then proceeded to call Joe "Sharkie" ( a nick-name I had given the tooth ).after These new braces mean no more Starbursts for LOW treatments.
BETA BUDDIES "Joe, 911 Cannot Help You With Bolusing"
| WEDNESDAY, JUNE 26, 2013
Yesterday. ( a couple of summers ago ~ this is a repost because it is one of my favorites involving the phone and camp ) I was shaking my head a bit, in disbelief, at myself, dressed in black yoga pants, a long sleeve shirt, with a jacket tied around my waist. I was dripping with sweat. It was 90 degrees. I was driving Joe to a rink. nope, no one.
BETA BUDDIES Today I Remembered The Shin Pads!
| TUESDAY, JUNE 25, 2013
Before we get to Joe, Bridge got ahold of my phone the other day. Here is what I found: OK.onto Joe: A youngish lady was standing at the back of an SUV parked at the field entrance. She was checking in campers, while another fella sat on a fence post handing out soccer balls to each attendee. Thought feed went something like: *Nah.I As for me.
BETA BUDDIES Too Many "Special" Things?
| SUNDAY, JUNE 23, 2013
A quiet, drawn out plea of "Stay. came from Joe. You want me to read some of our book?". It was last night. His blood sugar was a bad 39. Not that there is a good 39, but the "bad" means he was really feeling the 39. His eye lids were closed. His lanky bod was twisted up in the covers, curled tight in my bed. He was motionless. Joe, you ok?"
BETA BUDDIES Holiday Havoc
| SATURDAY, JUNE 8, 2013
Over the years. more specifically over the holidays of the years.even more to the point the holidays with magical bunnies and gray bearded men sporting pannuses ( or panni? for pleural.a pannus is that flap of belly skin that can hang down like a pouch ) we have ran into an issue that yep, you guessed it. an issue that involves diabetes.
BETA BUDDIES Going Well!
| SATURDAY, MAY 25, 2013
I promise I did not "wear" the headlamp as I dropped off Joe to his friend''s house for the sleepover last evening. However, for your viewing pleasure I did. I thought the "head lamp" was a thoughtful token for night-check-ease. Salami and pickles were brought for Joe''s snacking pleasure to veer him away from heavy carb snacking into the night.
BETA BUDDIES Freak Show
| FRIDAY, MAY 24, 2013
"If he is unconscious or has a seizure - Glucagon is in his camo bag OR call me and I''ll run over and give it. AND call 911". Yeah, so writing that part seems a little over-the-top.but what am I to do? It could happen. I like how I added in the part of just calling me so I could "run over" and whack him with the Glucagon. Freak Show. I know it.
BETA BUDDIES "HHH.e.l.p."
| WEDNESDAY, MAY 22, 2013
Literally thinking of " Cutting The Cord ". more on that soon. he ( a.k.a. Joe ) told me that we might need to leave a door unlocked for you. ah, so you could come in and check him in the middle of the night." ~ Joe''s-friend''s-mom to me. I paused to see what her reaction was going to be so that I could, in turn, mirror it. She started laughing.
BETA BUDDIES I Don't Have All The Answers
| MONDAY, MAY 20, 2013
"I knew about the highs and not taking care of my diabetes and losing arms and legs.but I did not realize I could feel so sick." ~ Joe talking to me about his death~ate~a~cracker ketone sickness feeling from the other day. ".so so without insulin, would I just feel like that? I would feel that sick until I died?". Uhh oh. Not the dying business.
BETA BUDDIES Fickle D'
| SUNDAY, MAY 19, 2013
"What was he?" ~ Dave to me at 3am. My "one-eye" started to close and then I thought perhaps maybe I should ask why he was asking. My "one-eye" reopened ~ "Why?". Dave''s sleepy voice yammered off something about 9 glucose tabs and something about the 40s. Me ~ "oh, I forgot to tell you that I never bolus for all of S''mores. just half. 9:06 am 306.
BETA BUDDIES An Hour's Time.
| SATURDAY, MAY 18, 2013
The numbers never cease to amaze me. How quickly they can turn on you; for the better or for the worse. 10:00 am-ish today : BG: 319 Ketones: 3.9. Site was removed; cannula was kinked. Supposedly Joe had been in the 300s since 6am. New site was place. A "correction" of 2.3 units of insulin was given. How long will this last?" ~ Joe to me. and ahhh.
BETA BUDDIES The "One-Eye"
| SATURDAY, MAY 11, 2013
I think I was pulling the "one-eye". you know.the middle of the night check "one-eye"? It is where I only open one eye so that I can traverse the walk to Joe''s room and sift through his d'' supplies to grab a blood sugar check, while tricking myself that I am still sleeping b/c one eye is closed. Dave to me: "What are ya doin''?". I am serious.
BETA BUDDIES Cyclone Holding A Chicken?
| WEDNESDAY, APRIL 17, 2013
My message to Joe''s school''s attendance line, which is manned by a friend, this morning (names have been changed for "privacy-sake" ): "Hi Lucy. Joe will not be at school today. He is still feeling under the weather. He will, however, be at the play again tonight as long as he doesn''t spike a fever. Joe was/is part of the backstage crew. sooooo.
BETA BUDDIES The Dreaded "No Parent Zone"
| SUNDAY, FEBRUARY 17, 2013
The "No Parent Zone" sign, printed on neon green backing, increased my anxiety level a bit. Joe was on skis for the first time in his life yesterday. Hockey is over for his team for the season, allowing time for new "adventures". Frankly, I was nervous to take Joe skiing when he was younger. I should have taken him, but I didn't. will crash ).
BETA BUDDIES The Interrupter, Refuser, Moper.
| SATURDAY, FEBRUARY 9, 2013
Pre-post Note: Joe does not get into trouble at school.? This is an unusual event, where.in my opinion.the "low" trumped the reasoning for his visit to the Principal's Office. "I I thought it was all my fault mom.". was stated in the sweet, soft, lispy Joe-voice. "I This infuriated me even more; Joe blaming himself. His numbers were documented.
BETA BUDDIES Yep, Still Alive
| SATURDAY, FEBRUARY 9, 2013
First off, Hellllloooooo out there!!! Yes, Yep, un-huh, of course, absolutely, positively. Joe, Bridge, and Dave, and I. we are all still alive. Here is what has been going on: I got a job as an Elementary School Nurse. But, ya wanna know what? I wrote those posts as part of our story in living with diabetes. so, I am leaving them up.
BETA BUDDIES "I Take Full Responsibility Mom" ~ Joe Maher
| TUESDAY, OCTOBER 16, 2012
I have written on the BUDDIES to humor, to help, and to let other Type 1 families know "same-same". Our daily grind goes unnoticed by most. Our "dangers" of activity and food and the lot seem silly to those living the "normal-normal" and not the "new-normal" that we endure. Today. Today we had a bit of a scare. Today. nice drama Joe). Bridget: "Oh."
BETA BUDDIES Welp, He Did Good. I Did Not.
| SUNDAY, SEPTEMBER 30, 2012
We're up. Been up since 5:30, avoiding the breakfast IOB.Joe's tryouts are at 8am. Last night, as Joe went to bed, I asked him to wake me when he woke in the morning. Told him that I would get his breakfast ready right away.plan was to hopefully feed him before 6am. OK.that's the boring stuff.onto the good stuff. Tryouts (part 1) went well. A lot.
BETA BUDDIES Never Let Your Fear Decide Your Fate
| SATURDAY, SEPTEMBER 29, 2012
60 minutes or so.ago. Driving back across town to buy a 564xl black cartridge for our printer. Gotta have Code of Conduct printed and signed and Medical Form printed and completed by 3:30pm today.for Joe's hockey tryouts. While driving, I am on the phone "directing " Dave, who is manning Joe. Feed him something now. You see, I am nervous.
BETA BUDDIES D' Diligence
| THURSDAY, SEPTEMBER 27, 2012
This just in. By the way, I am grumpy.have a cold. Car ride home from school, about 10 minutes ago. Me to Joe: "You ordered the school lunch for the field trip tomorrow. Right?" ( We filled out forms for the all day hike a couple of weeks ago. He hikes fast. has been like this for years. yes, it is a little embarrassing ). DUH-faced Joe: "Mom!
BETA BUDDIES The In-Between Place
| WEDNESDAY, SEPTEMBER 26, 2012
11:58pm last night.on the heels of the news of another child lost, at the age of 13, to Type 1 Diabetes. I hear it. Is it part of my dream? As I lay there in some sort of state between wake and sleep, I try to figure it out. The sound. What is it? Then it stops. My mind rests. I slip back into sleep. It starts again. I hear it. a cloudy haze.
BETA BUDDIES Cranky Pancreas
| TUESDAY, SEPTEMBER 25, 2012
Yesterday. Another first. Joe walked to the "Tween Center" after school (yes, he is only nine.apparently they are called "tweens" these days). The Tween Center is where he and his 4th and 5th Grade pals can go and "hang" for a couple of hours after their school day. The plan was for him to have his phone on. really. I was to pick him up at 4:30pm.
BETA BUDDIES Foul Fowl
| SUNDAY, SEPTEMBER 23, 2012
Yesterday. Dexter was double-up-ing, Joe's blood glucose was in the 180s. I smacked him with a 50 gram bolus, straight up.and added a few tenths of a unit for good measure. Yeah "exact science". That may cover half of it, then I'll figure out the rest once I know if he is gonna eat it all. It's gotta be like a good 120 gram-er or so. Dear God.
BETA BUDDIES KinKy In The Car
| FRIDAY, SEPTEMBER 21, 2012
5:50a.m. this morning.Dexter was donging-off for "LOW", Joe was actually 223. I corrected and planned on changing Joe's site when he woke. It had been in since Monday ( that is a long time, I usually change him out every two to three days ). I also made a mental note to rip out Dexter. He was dead to me. How was your sleep bud?". He changed. Period.
BETA BUDDIES A Mess
| THURSDAY, SEPTEMBER 20, 2012
Ugh.It was a mess. It started with Joe rolling up the BETA BUDDIES Book and kind of sitting on it. He did not want the class to see his picture on the cover. I think he looks CUTE here. So, Joe and I presented Type 1 Diabetes to his class yesterday. I think, well I know that I embarrassed Joe. I left his school feeling pretty bad, sad, and mad.
BETA BUDDIES Skimming The Skittles
| WEDNESDAY, SEPTEMBER 19, 2012
Not sure why I thought the top of the Ferris Wheel was a good place to initiate the discussion. Perhaps I felt like it provided me with a little "intimidation factor" with the questioning of Bridget and Joe. Again, not sure why you guys read this blog. Clearly my parenting tactics should be called into question. FERRIS WHEEL. JOE ON FERRIS WHEEL.
BETA BUDDIES SIX
| TUESDAY, SEPTEMBER 18, 2012
It was six years ago today, at about this very time that I was driving Joe to his Pediatrician's office. It was there that his urine was dipped and sugars and ketones were detected. It was then that he was diagnosed with Type 1 Diabetes. An important day that changed our day-in-the-life. dblog type 1 diabetes blog Diagnosis
BETA BUDDIES CPS Alert.
| SUNDAY, SEPTEMBER 16, 2012
Time for starvation (no food.water and diet drinks are OK), immobilization ( Phineas and Ferb while lounging on couch), and exsanguination (blood sugar checking every hour). It is basal assessment time. Trying to get a handle on Joe's numbers. Things are less than optimal. ( bad ). My DREAM ASSESSMENT: Who the hell am I kidding? units/Hr.
BETA BUDDIES The Tale Of Three Little Dexters
| SATURDAY, SEPTEMBER 15, 2012
First off, did you know that basil should be stored like fresh cut flowers? Clip stems and place in water. I had no idea. Basil has been decomposing in my fridge and in my pantry for years. Now.onto our story. I wasn't too concerned about it when the wet Joe emerged from the house with a glowing Dexter #3 craddled in his open palm. he broken?"
BETA BUDDIES RAGE Tweaking
| THURSDAY, SEPTEMBER 13, 2012
Can you go with a higher protein snack this morning? To ward off the lows?? Like a Go Lean ?". Sure Ma". Time to go ooooo !" ( where is he?). I find him in my bathroom, LA Looks being combed into his hair. A s**t ton of it. The style.Eddie Munster-ish. Joe has school pictures today. Eddie.NOT Joe. "I I just wanna look nice.". Yesterday Morning.
BETA BUDDIES Thank You Phone Caller Friend. Community.
| WEDNESDAY, SEPTEMBER 12, 2012
You can thank the letters "W" and "M" for the following post. I have been up. I have been up at 1:40 correcting a 300. I have been up at 4:15 making sure the correction worked or that it didn't induce coma. And I am now.just up.because who can sleep with all these ups and downs. I wonder how Joe's body feels while it is "W"-ing and "M"-ing? tired.
BETA BUDDIES No Boluses
| MONDAY, SEPTEMBER 10, 2012
Last night. In our kitchen.after dinner.Joe with a smidge of a smudge of Ranch Dressing on his cute chin. Somewhat outta the blue. Joe: "So I would die without Insulin?". Me: "Yeah.not immediately. but eventually.". * (s**t, would it take days? weeks? I hope he doesn't ask. please don't ask.please don't ask) *. Me: "Can you even begin to imagine?
BETA BUDDIES SIGNS EVERYONE SHOULD KNOW. EVERYONE.
| SUNDAY, SEPTEMBER 9, 2012
"You are so lucky that you caught it so early on.". I cannot even begin to tell you the amount of times I have heard these words over the past six years since Joe was diagnosed at the age of three. A general misconception seems to be that people can just be hanging out living with Type 1 diabetes for years on end. undiagnosed, seemingly unaffected.
BETA BUDDIES For Meri.
| SATURDAY, SEPTEMBER 8, 2012
Admittedly, I am not good at this sort of thing. Hard to find the right words. What to say? Then there is the distance. So, shared silence is impossible. Hard. I have been hitting up Google for grief quotes for Meri. She will lay Ryan's body to rest today; she and her friends and family will celebrate his life today. Today. The grief quotes.
BETA BUDDIES No Joe, It Is Not A Cigar.
| THURSDAY, SEPTEMBER 6, 2012
Where to start with this one? Joe has been running high today. He woke up in the 270s. I asked the School Nurse to have him check ketones if he was over 250 at snack time. He was. She did. They were moderate.they were measured via urine (the blood ketone meter was giving an error message ). My proposal was for him to check a blood sugar. Fine.
BETA BUDDIES Our Parenting Conversations Are Different
| THURSDAY, AUGUST 30, 2012
Six years almost. Six years since Joe has been diagnosed. It is strange how a certain acceptance has developed. As I send him out on his bike, on in-line skates, on foot into our community, as I tuck him into bed at night, as I drop him off at school. The kids were out in the 'hood playing with their friends. Dave walked in from his day of work.