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BETA BUDDIES The Mirror
| WEDNESDAY, FEBRUARY 7, 2018
As we walked side-by-side through the parking garage into the hospital yesterday, his 6' frame towering over me.he said 'I don't really even think about having diabetes except on Endo days and sometimes when I have to check a number.' Really?' Yeah' He then went onto say something that briefly caused my eyes to sting. He said, 'it's weird, but when I look in the mirror.I don't see my POD anymore. I don't see the CGM. I just see me.'
BETA BUDDIES He Should Do That, He Can Eat That, And His Diabetes May Vary
| FRIDAY, NOVEMBER 10, 2017
Daily, I am reminded we each, each and everyone of us, have our "thing". I believe most of us want others to understand, or attempt to understand, our "thing". I want more understanding and acceptance for Joe and all persons with t1d. The daily care, attention, and psycho-social-emotional toll the disease demands can be overwhelming. To an outsider we can look like we are micromanaging things and making a bigger deal out of things than there needs to be.
BETA BUDDIES Some Ding Dang Blunt Honesty
| SUNDAY, OCTOBER 29, 2017
What he was expressing isn't emoted often. It's rare for him to complain about t1d. He truly just goes about his day-in-the-life of teenager-hood like a teenager-y boy in a teenagr-ish manner. Being a Teenager About a week, or so, ago. Perhaps it was because he does most of his care now. Maybe it coulda been because he was being a typical 14 year old boy.
BETA BUDDIES Eye Protection
| SUNDAY, SEPTEMBER 3, 2017
How Joe makes bacon snacks.
BETA BUDDIES They Don't Train You About This Stuff
| THURSDAY, JULY 20, 2017
#theydonottrainyouforthisatdiagnosis #nightchecksdothematyourownrisk There was no time for a thought to flicker in my thought feed, as I dropped to the floor like a 140 pound sack of potatoes. Last week. It was 2-ish a.m. I had just checked Joe's blood sugar and turned off his bedside lamp and was traversing my way around and through what looked like laundry fields, hills, and mountains.
BETA BUDDIES Confidence in the Desired Outcome
| THURSDAY, JUNE 29, 2017
The title.I think that means "hope". Where has the time gone? He is starting high school in the fall. He's been living with, living well with t1d for like 11 years now. I've been typing away on this blog on and off over the course of 7 years. Graduation from Middle School Woodchuck (I think normal people call it a "diabetes bag") has evolved from a camouflage-murse to a gray kinda-like messenger bag to a royal blue Nike string-strapped backpack. This new bag, well.it's
BETA BUDDIES The Exam Table
| TUESDAY, JUNE 27, 2017
There was a time I had to lift him up to the exam table. His A1C was 7.1%. An 8:15 a.m. appointment, during his first week of summer vacation, was not a cool start to his day-in-the-life.
BETA BUDDIES On A Stick
| TUESDAY, JUNE 27, 2017
As he stumbled to the pantry for a juice box, an 'I feel like a butt cheek on a stick' was heard. What's your number?' '38' 38' A teenage boy's description of a low in the day-in-the-life. dblog #LOWs
BETA BUDDIES Letting Go. A Bit More
| THURSDAY, MAY 25, 2017
Sometimes I feel like this d' mom business is like being drug down a path, not of my choosing - mind you, by my 4th toenail; I claw and scratch and dig at the earth in resistance. I worry. Many times I feel alone with that worry, as it can be belittled by those who don't truly understand the nuances of t1d. Yesterday. Maybe it's because he hasn't really ran this far before. Maybe it's because it's a crowded and chaotic event.
BETA BUDDIES The Game
| MONDAY, MARCH 6, 2017
5:18 am - no signal on his CGM. I should check him. If he is high, there is plenty of time to correct; a little over 5 hours. I was careful not to wake him. He needs his sleep; especially today. I lifted his ring finger and pressed the lancing device firm to his finger tip, hoping to avoid the need for multiple pokes to get a blood drop. He was 386. Not a great number. I corrected and plodded out of his room and down the stairs. Was the ringing tinnitus? Or his POD?
BETA BUDDIES I'm a Checker, but not a Mice Checker.Yo
| MONDAY, FEBRUARY 6, 2017
A few days ago. Pre-post note: We are currently besieged by mice. Traps are set in the basement and the main level of our home. The words "GI BUG" scare the BeJeezus outta even the most resilient, calm, cool, and collected of d' rents. Joe currently has one. I was up at 3 am. checking a blood glucose, ketones, and then bolusing insulin. As Dave woke, I updated him on the night care provided. Me: "I checked his BG.high 200s, ketones were OK.I've ve bolused twice over the last three hours."
BETA BUDDIES Maturi-D'
| FRIDAY, FEBRUARY 3, 2017
Over the years, I've tried to teach him the proper way to do things. A healthy diet was discussed and modeled. he did his own thing, choosing to eat from the "Brown and Beige Club" for years - chips, bread, mac and cheese, chips, crackers. Now, lean meats and vegetables are consumed regularly. Blood glucose checks were encouraged multiple times daily. This has been his routine for the most part, but with some nagging. Rotating pump sites, took years; like 9 to be exact.
BETA BUDDIES Growin' Up D'
| WEDNESDAY, FEBRUARY 1, 2017
Just like when you questioned their ability to one day pee and poo on the potty, to feed themselves using a utensil, or to tie a shoelace, a parent of a child with t1d questions the ability of their child to perform the tasks involved in managing t1d, independently. The tasks are one thing. They are fairly straight forward. First do "this", then "this", and then "this". This approach can be used to teach checking a blood glucose, carb counting, and delivering a bolus of insulin.
BETA BUDDIES Feelin' "Got"
| FRIDAY, JANUARY 27, 2017
I'm not sure if isolation quite describes it. I suppose it is a feeling of loneliness and of feeling misunderstood. Today, I didn't feel that way. Today, I felt "got". Today, my eyes teared up as I read an email from one of Joe's teachers. This email was not in response to any recent issues. It was an unexpected email of praise for Joe. A portion: 'I can only imagine how challenging it is to live each day with diabetes, and the impacts it has on Joe's personal and academic life.
BETA BUDDIES Chromebook Confiscation
| FRIDAY, JANUARY 20, 2017
NOTE: Joe does not have a Chromebook Confiscation history. I knew, over the years, we'd run into difficulties of not being understood. We all deal with that in our day-in-the-life. I guess I didn't think I'd be saying things like this to an educator: 'Not only is his access to his school day limited by treating and waiting out lows, but to take away his Chromebook for the remainder of the school day, because of his medical condition. limits his access further.' My voice was measured.
BETA BUDDIES Night Shift
| TUESDAY, JANUARY 17, 2017
At least he piled up the juice boxes neatly. The above is the scene that greeted me, as I went in to wake him a few weeks ago. Joe, the juices are not for snacking on.' 'I I was low in the middle of the night.' Three times?!' 'Yes.' Over the years, people have asked me. When will Joe start taking care of his diabetes during the night?' These people are well intentioned. I've been pretty adamant that Joe sleep when he can. Diabetes keeps him up enough. He wakes, at times, when he is poked.
BETA BUDDIES School Nurse Call
| MONDAY, JANUARY 16, 2017
At about 3pm, the end of the school day, a few days ago. I received a call from Joe's school nurse. She notified me of a recent low; he treated. He left school without re-checking his blood glucose; he didn't want to miss his ride home. your telling me to call him and make sure he makes it home alive (laughter). and if he doesn't, I won't hold you responsible.' Laughter closed the conversation between Joe's school nurse and I. These are the things you say, cuz they are kinda true.
BETA BUDDIES Choke It Down
| MONDAY, JANUARY 16, 2017
A couple of weeks ago, after a hockey game, Joe bought an apple strudel-y muffin from the rink snack bar. He was going to eat it on our 30 minute trip home. 'My My number is 223.60 grams.I'm m not going to correct, but will cover the muffin.' unit bolus was then cranking into his subcutaneous tissue to cover this muffin. which he hadn't yet tasted. I chimed in with a 'I sure hope you like it.' 'If If I don't, I can either cancel the bolus and drink a juice. I'll just have to choke it down.'
BETA BUDDIES Meatloaf
| TUESDAY, JANUARY 3, 2017
Joe cut this meatloaf-loaf into thirds this morning. Meatloaf pic added for comic relief. His plan; take a 1/3 of the loaf to school for lunch each day over the next few days. We no longer use the " daily log ". We transitioned to a scrap of paper for carb counts; he says he doesn't need it, but it gives me some sense of security. A less micro-managed day-in-the-life
BETA BUDDIES D'straction
| MONDAY, JANUARY 2, 2017
It distracts him multiple times a day. Prior to eating a blood glucose is checked, carbs are counted, insulin is dispensed. It distracts him nightly, as he hopes to wake the next morning. It distracts him when he needs to sip juice, as he sleeps. It distracts him when he gets left behind because he needs to do a check, change a pump site, or consume sugar. It distracts him when he wants to be active. It must be taken into consideration every time he plans to exert himself physically.
BETA BUDDIES There's a New Woodchuck in Town
| WEDNESDAY, AUGUST 3, 2016
As many of you long time followers know, we have used the Eli Lilly bag to house Joe's diabetes supplies over the years. This bag has been affectionately called "Woodchuck". Why name it? You may ask. Well, would you rather yell "get the diabetes supply bag!" three words and boring) OR would you rather yell "get Woodchuck!" (one one word and much more interesting and dramatic). Anyways. The old Woodchuck was getting a little haggard. He was dirty.
BETA BUDDIES Uh.Yeah.
| MONDAY, AUGUST 1, 2016
In the hot tub, last night. Dave and I were talking about Joe's Dexcom. We are currently waiting for a new receiver, as our last one has lost it's volume. It seems it is plenty loud to alert for a high, but is barely buzzing for a low. When our Dexcom has adequate volume, Dave and I will take turns manning it at night. When I man the CGM, it alarms. I eventually wake up. I deal with the alarmed for issue. When Dave mans the CGM, it alarms. I eventually wake up. I kick Dave. he wakes up.
BETA BUDDIES 1:37 am
| FRIDAY, JULY 29, 2016
In the fog of my blissful sleep, I hear something. It's important. I recognize that as I slumber. I try to remain asleep, but my mind searches for the implications of the sound. It's 1:37 am. My subconscious knows to to be on "high alert". Joe just participated in a power skating camp this evening.with a failed site.which resulted in a HIGH blood sugar. which required a new pump site.and a correction dose of insulin. This may, or may not, end up with unstable blood glucose readings.
BETA BUDDIES He's Resilient
| FRIDAY, JULY 29, 2016
Perhaps one of the most difficult things to explain to persons not intimately familiar with t1d is the unpredictability of our day-in-the-life. This week. Joe participated in a power skating camp. The camp was two hours long. It took place from 6:50 to 8:50 pm. Now, this is one of those experiences where I might choose fiery hot pokers to be jabbed into each eyeball over the the planning, the anxiety, and the blood sugar carnage the camp could potentially cause.
BETA BUDDIES Anxiety, Courage, Bravery
| WEDNESDAY, JULY 13, 2016
This summer, in particular, I am aware of it. Raising a child with t1d takes courage. This post, in no way is meant to take away from those living with t1d. Persons with t1d are perhaps the most strong, brave, and courageous people I know. I live it. I watch it day in and out. When you have a child you are there to love them, to teach them, to support them, to guide them, to comfort them.
BETA BUDDIES The Tree
| MONDAY, JULY 11, 2016
Yes, the title has nothing to do with the post. I just loved the photo I took of the area where we waited out the low. Over the past 10 years, diabetes, for the most part, has become routine in the day-to-day, the hour-to-hour, the meal-to-meal, the night-to-night. It blends in and really, at times, doesn't seem to be too big of a deal until it stops your child in his tracks. When it stops Joe from walking, well.
BETA BUDDIES Take That Growth Hormone
| SATURDAY, JULY 9, 2016
Growth Hormone is released from the pituitary, which is a part of the brain. Growth hormone counterbalances the effect of insulin on muscle and fat cells. High levels of growth hormone cause resistance to the action of insulin. Basically, this means blood sugar levels will run high during periods of growth. A week.or so, ago. we visited Joe's endocrinologist. Measurements were taken, values were obtained, a physical exam was conducted, mental well being was noted. Another 1.7
BETA BUDDIES Life Support Fad
| SATURDAY, MAY 28, 2016
A fad or trend or craze is any form of collective behavior that develops within a culture , a generation or social group and which impulse is followed enthusiastically by a group of people for a finite period of time. More on track. I don't think about it much. They are a part of him; his CGM and his pump. When I see him, I see Joe. The devices are a seamless blur on the backs of his arms. They help keep him safe; alive. I remember when he was three.
BETA BUDDIES Not the "Cure" I Would Want for Him
| WEDNESDAY, MAY 25, 2016
Joe ran up to me, as we were leaving his track meet yesterday. An excited "Mom, I just met a man who said he 'used to have diabetes'". I looked directly at Joe."What?" What?" "Yea, Yea, he saw my pump and then told me." My head did a subtle side-to-side shake. My mind then went to the word "whack-a-doodle".
BETA BUDDIES Insulin Reigns Supreme
| THURSDAY, MAY 19, 2016
D' Blog Week: Day 4: I went with the Wildcard of getting physical. Managing diabetes during exercise can be tricky, so share what works for you or your loved one with diabetes and maybe it can help someone else. What do you do when you want to work out, but your blood sugar is lower or higher than you would want? How do you cope with this? Or how do you manage gym days at school for your child with diabetes? I was living the dream.
BETA BUDDIES "This Isn't Diabetes 101!" ~ Reyna Maher
| WEDNESDAY, MAY 18, 2016
D' Blog Week: Day 3 : There is an old saying that states "Sticks and stones may break my bones, but words will never hurt me." I'm sure we've all disagreed with this statement at some point, especially when it comes to diabetes. Many advocate for the importance of using non-stigmatizing, inclusive and non-judgmental language when speaking about or to people with diabetes. For some, they don't care, others care passionately.
BETA BUDDIES Acceptance
| TUESDAY, MAY 17, 2016
Blog Week: Day 2: We think a lot about the physical component of diabetes, but the mental component is just as significant. How does diabetes affect you or your loved one mentally or emotionally? The psycho-social-emotional toll of t1d has never been lost on me. The micro-management of food. The time the care takes. The numbers "rating" how one is doing at managing the disease. The stares. The less-than-helpful, well meaning, misinformed comments.
BETA BUDDIES The Solo Sleepover
| SUNDAY, APRIL 24, 2016
And, there are times I write about the day-in-the-life to let you know you are not alone. And, we did it! We made it through some new situation alive, some-what happy, and with some sorta glucose stability. Words like "trampoline park" and uh. sleepover" scare the bejangels outta even the most seasoned of d'rents. Well, I got to experience them both in the time span of less than 48 hours. The trampoline park escapade was with a friend and his grandma; not with me and my watchful eyes.
BETA BUDDIES A Free Meal
| FRIDAY, APRIL 22, 2016
It's one, of many, difficult concepts to explain to those who do not intimately know t1d; the tasks that accompany the simple act of eating. Typically, a blood glucose level should be obtained. The number, if high, should be corrected with insulin. The number, if low, should be treated with fast acting carbs. The food that will be consumed should be counted for grams of carbohydrate. The carbohydrate count should then be covered with insulin.
BETA BUDDIES Some Work Is Better Than No Work
| THURSDAY, MARCH 31, 2016
Over the past couple of months, things had been relatively stable in the diabetes department around here. Blood sugars had been within range for the most part; pump settings stagnant. Lows are now plaguing our days and nights. Lows are seeping into Joe's school days. This morning, as we hopped into the car for his 6:45 a.m. high jump practice. "I I backed off your breakfast ratio.hopefully you won't go low this morning." "mm" mm" "Are you missing a lot of class. with all these lows?" "No.
BETA BUDDIES A-low-n
| WEDNESDAY, MARCH 30, 2016
As I pulled up, he was sitting on his friend's driveway. His shoes were off. He was alone. He looked pale. There are times I'm not sure what to expect. Sure, experience has given me some ideas. He may be pasty white and shaking. He may be curled up in a ball, moaning and mumbling, as he deals with the low. Or.he may be sprawled out like a 5'6" over-cooked, linguini. These thoughts went through my thought feed yesterday, after I read the text. The text stated he was not doing well.
BETA BUDDIES The End of the Beginning
| MONDAY, MARCH 28, 2016
My time left with them is diminishing. I'm soaking up the family moments with a keen awareness of changes and transitions that will inevitably arrive, in the all too near future. Joe and I had an interesting conversation recently. The conversation was last week; in the car.and yes, you guessed it, on our way home from some sort of hockey. I'm going to go to Saint Michael's." Joe was talking about a local college. He, apparently, is planning on going to school there in five years.
BETA BUDDIES Eggs-cellent Idea
| SUNDAY, MARCH 27, 2016
"I think I'll take a break from decorating." He was low. Like, 50's low. His demeanor was calm. This low was not a big deal. He recognized and verbalized shaky hands and trying to draw on eggs was a frustrating combo. Living the day-in-the-life with sound judgment. lowprobs. dblog #LOWs holidays
BETA BUDDIES Hopefully Never
| TUESDAY, FEBRUARY 16, 2016
Studies have shown depression symptoms in children and adolescents with type 1 diabetes are nearly double that of the highest estimate of depression in youth in general. Today we were at our quarterly Endocrine appointment. This one started off a bit differently. We, Joe and I, were each given a folder with a depression-y/anxiety self assessment to complete. Mine was a couple of pages long with a bunch of statements followed by "yes" and "no" check boxes to check.
BETA BUDDIES The Toe Is A No Go
| MONDAY, FEBRUARY 1, 2016
Perhaps I shoulda warned him before doing it. Maybe a little heads-up woulda been the appropriate thing to do? I'm not sure what good toe poking etiquette entails. In hind sight, initializing a toe-poking-protocol on a sleeping subject is probably not the proper procedure. Yesterday morning around 6:57-ish, the house was still sleeping; well everyone, but me. I was headed out for my morning run. Joe's Dexcom was showing a 67 and diagonal-downing. A check was warranted on the sleeping Joe.
BETA BUDDIES Sub Flub
| SATURDAY, JANUARY 30, 2016
"Did it bother you?" "No No mom, I was OK with it. It really wasn't a big deal." A couple of afternoons ago. Joe was sharing about his school day. He had a substitute teacher in one of his classes. His Dexcom started donging off "Meep-Meep-Meep style" indicating a low I presume, from the history of numbers. One of Joe's classmates started teasing Joe.stating he should put his "cell phone" away. The students were trying to rattle the sub, not tease Joe per-se.
BETA BUDDIES Oh YAY! A First!
| WEDNESDAY, JANUARY 13, 2016
In all our years in dealing with diabetes, we haven't encountered this one yet. I knew we were due. I knew someday it would happen. Yesterday. "I I cannot believe I have to use. th.i.s." Joe spoke about it like it was a dirty dish rag. He was disgusted by it. Between the process of manually entering in a BG and the fact that his arm was tethered to it with "little-boy" lengthed tubing, he felt it was archaic.
BETA BUDDIES He Needed A Little "Back Up"
| SATURDAY, JANUARY 9, 2016
One of the main reasons I write is so others living with t1d feel a little less alone. While my stories are short, little vignettes of sorts, I hope you get a glimpse of the victories and challenges we face. Not all stories necessarily reflect us in a positive light. This is real. Diabetes has not only impacted Joe's life, or my life, or Dave's life.but it, at times, impacts Bridget's, as well. A couple of hours. I was reading. I was reading upstairs in my room.
BETA BUDDIES Sled Dread
| WEDNESDAY, JANUARY 6, 2016
Driving away my thoughts were many: 1) a low Joe slumped and crumpled on a cold, icy snow bank at the bottom of the sled hill, 2) a lost Woodchuck (the diabetes bag that houses sugar and Joe's pump) in the dark woods, 3) guilt over our current typical mother-teen power struggles, and 4) fear of something happening to him, like an untimely death, and our last conversation was me nagging him. Many of the thoughts are typical of most parents I suppose; except for the low part and the Woodchuck part.
BETA BUDDIES Sleep Drinking Talking
| FRIDAY, JANUARY 1, 2016
Last night.Or shall I say this morning at 1:37am-ish. I'm doing the one-eye, half asleep, orange-juice-dispensing-via-a-straw-maneuver to a sleeping Joe. He sleeps during night sugar dispensing. He chews and drinks in his sleep. Frankly, I kinda sleep through it too.
BETA BUDDIES Conscientious
| THURSDAY, DECEMBER 17, 2015
Yes, he is 12. Yet, it's already on his mind; driving and diabetes. In particular, lows and driving and the impact of those two potentially dangerous things occurring simultaneously. "If If it's a long road trip. like a few hours, I think I'll stop and check every hour. does that sound good?" Yeah, Bud, that sounds like a good plan." "I I would never want to hurt someone." "I I know." "You You take good care of diabetes. When it's time, we will ask your doctor about it.
BETA BUDDIES Pump Chucking
| SUNDAY, DECEMBER 13, 2015
As I picked up the pizza-grease-laden pump ( yes, as in insulin pump ), I outwardly sighed and firmly stated "we are having a 'family moment' here". I may or may not have said something about "losing my $*%#" at some point during this story. I was driving. I was driving like highway speed. I missed the lobbing of the pump, but I had a feeling it was coming. Joe was frustrated. He had just played a 45 minute hockey game. His team hosted a Canadian team.
BETA BUDDIES Fair Flu Shot
| FRIDAY, NOVEMBER 27, 2015
She slouched down in the passenger seat; her messy top not bun was getting scrunched up. A few days ago during our car ride to the pediatricians office, mentions of flu mist and flu shots peppered the conversation. Bridget was listening in earnest as Joe talked about live and dead viruses. The dead ones being what he needed, due to his diabetes. Unfortunately the dead ones were in the shot and not the mist. Bridget could opt for the flu mist, since she does not have a chronic condition.
BETA BUDDIES A Small Mention
| WEDNESDAY, NOVEMBER 25, 2015
Earlier in the morning he had played a hockey game. Then he swam. As he approached me from the hotel pool, I knew. The stumbles in his gait gave me the heads-up before the quickly whispered "I feel low" was uttered into my ear, while I stood in the hotel lobby. I tried to get him to sit and check. He wouldn't. He immediately headed up a flight of stairs to our room. This act gave me some peace of mind, his ability to climb the stairs. As he entered our room, he crumpled. I checked. He was 24.
BETA BUDDIES My REM Cycle
| MONDAY, NOVEMBER 23, 2015
Many, many countless nights this happens to me. The Dexcom alarms integrate into my dreams. They seemlessly become part of my REM sleep cycle. At times, I believe the alarms have continued for 30 minutes, perhaps longer, before I am nudged to wakefulness. Our Backyard/Moon 1:38am , a few nights ago. WOMPP! WOMPP! WOMPP ! WOMPP ! It becomes part of my dream. It's annoying because I can hear it and it keeps me just enough awake, but somehow I'm kind of sleeping. WOMPP! WOMPP! WOMPP ! WOMPP !
BETA BUDDIES Not So Easy
| WEDNESDAY, NOVEMBER 18, 2015
Diabetes care is non-negotiable. Joe knows it. If Joe doesn't do his diabetes jobs, checking blood sugars and bolusing, there is a consequence. It is the loss of his phone for the following 24 hours. Some people think this is harsh; like he is being punished for having a disease. Think of it this way, he is a 12 year old with an iphone. It's not a big deal. Not taking care of diabetes is a big deal. It can alter his morbidity and mortality.
BETA BUDDIES The Smiley Face Did The Trick
| MONDAY, NOVEMBER 16, 2015
Joe finds it annoying. The questions. The questions of a head pancreas, who is supervising a pancreas in training. It was much easier when I did all of the diabetes care. Did you check?” “Did Did you wash your hands?” What is your number?” What was your number?” “Joe, Joe, check your number?” What is Dexter saying?” What was Dexter saying?” Have you bolused?” “Did Did you bolus?” “Joe, Joe, bolus.” “Did Did you eat sugar?” “Eat Eat sugar.” “Do Do you have your supplies?” “Don’t
BETA BUDDIES It
| WEDNESDAY, NOVEMBER 11, 2015
I've changed. It has altered my senses, my thoughts, my heart. Perhaps it has made me a better listener. My ears perk up when I hear the beep from his glucometer. I wonder what number will appear. When the cabinet door is heard creaking open, I know a snack is being searched for. When he is out playing in the neighborhood, I listen for the front door; for his return. My ears always primed for the quick, brisk, quietly stated "I feel low".
BETA BUDDIES The Scotch Kind
| TUESDAY, NOVEMBER 10, 2015
I was only in the basement for 25 minutes, working out. I came up to this. An old POD site, oozing blood on our kitchen counters ( makes you want to come over for dinner, doesn't it? ). I look over to Joe, who is manning the POD change. I couldn't find medical tape, so I just used the scotch kind.' Nice. A day-in-the life of a 12 year old boy with diabetes. dblog #type 1 diabetes Omnipod
BETA BUDDIES Normally Atypical
| SUNDAY, NOVEMBER 8, 2015
As he clambered through the front door, a brisk and soft spoken 'I feel low' swiftly left his lips. He was 68. It was dark. It was an early evening hour. Type 1 Looks Like Us A few days ago. An hour or so before the above mentioned clambering. I entered the house after a run. In the mudroom, I removed my shoes. My eyes glanced to the shoe tray and then to the shoe bin. His sneakers were nowhere to be seen. I then look to the kitchen.
BETA BUDDIES Changing
| THURSDAY, NOVEMBER 5, 2015
The intake questions were directed to Joe. Do you use Apidra in your pump?' 'Yes' Yes' 'Are you on any other medications?' 'No' No' 'Have you been to the hospital for diabetes since your last appointment?' 'Yes' Yes' 'Were you admitted?' 'No.' Have you had your flu shot' 'No, not yet.' When was your last dilated eye exam?' Joe's eyes darted to me. I answered. A couple of days ago, we visited the Endocrinologist. Joe's A1C was 7.1. The usual things were discussed and assessed.
BETA BUDDIES #Children with Diabetes Halloween Problems
| SATURDAY, OCTOBER 31, 2015
"Mom! I need help with getting the share going.my phone won't work with the Morph Suit!" Joe - as Obama in a red Morph Suit (Halloween 2015) It's the first year I have not gone with him to trick-or-treat. Let me explain something to you. Trick-or-treating is a form of sport to Joe. He did not want to go with a big group of friends for fear the candy-hander-outers would not give him as much candy if he was associated with a large group.
BETA BUDDIES The Use Of the CAPS LOCK Comforted Me
| SUNDAY, OCTOBER 25, 2015
Facilitating independence with diabetes management in the pre-teen years is causing me much anxiety. Joe was at an overnight hockey camp last weekend. Camp involved multiple on-ice sessions, a water park visit, and foods Joe does not typically eat. He spent the night in a condo with 4 of his hockey peers and a "condo" (chaperone) dad. I stayed in a hotel close by. I slumbered with my phone in my hand and a watchful eye on the Dexcom Share.
BETA BUDDIES A GOOD Day!
| MONDAY, AUGUST 5, 2013
"Does he have some Gatorade that he keeps with him?" Hockey camp coach to me.this morning. in response to my informing him that Joe has type 1 diabetes. Ah.well yeah.". ?. I thought this facial expression goes well with the "Ahhh.well yeah." response. Oh man, how I wish managing Joe''s diabetes only entailed some Gatorade. Joe attended another hockey camp today. It runs all week. He is on the ice from 9am to 11am and then again from 1pm to 4pm. The camp is named "Battle Camp".
BETA BUDDIES Patient Portuguese Pancreas Princess
| FRIDAY, AUGUST 2, 2013
There may be a little spittle on your screen if ya try to say the title out loud. Truth, I am Portuguese ( half, from my father''s side ). Truth, Joe''s misguided T-cells forced me into performing as an exogenous pancreas. False, I am not patient. And I am actually a "queen" not a "princess".well, well, my name means "queen" in Spanish. Sorry for the jibber-jabber. This morning at 6:30ish. "Is Is Joe up." ( my less~than~subtle way of knowing he is alive ). They are both still asleep.".
BETA BUDDIES Night.Strip.Trash
| THURSDAY, AUGUST 1, 2013
There was a time that I was a neat night pancreas. ?. See how the used test strips are/were housed in a dish? *?. Oh.yea.If ya get some sort of error message when checking Joe. just grab another strip and re-test.and if that one errors-out.just grab another strip.and so-on.til you get a number." ~ Me to Dave. You see. A few nights ago.and btw, I am surprised this hasn''t happened to me before during my 7 years as an exogenous pancreas.
BETA BUDDIES Even While Running A 1/2 Marathon
| TUESDAY, JULY 30, 2013
I checked his blood sugar, fed him, and bolused him. I then set the stove clock to alarm in two hours to remind him to do a blood sugar check. He was to call me with the resulting number. The Marimba ( iPhone default ringtone ) started-in around mile 9. As I picked-up the phone, the runner next to Dave and I said '' ah helllllo. you are a little busy right now?'' The call was from Joe. It was during a half marathon that Dave and I ran a couple of days ago.
BETA BUDDIES Limitations.
| MONDAY, JULY 29, 2013
As much as Joe likes being free of the "leash", he has, at times, verbalized the pros of the Ping and the cons of the POD. He continues to state that he prefers the POD. However, his frustrations with the switch to the Omnipod have not gone unnoticed by me. In particular the adhesion issues, the POD failures, and thus subsequently the added site changes. My Dear Joe. He rarely complains about the diabetes aspect of his life.
BETA BUDDIES One Third (It's a BIG "Hunk")
| SATURDAY, JULY 27, 2013
In response to "Overkill or Good Diabetes Parenting?". Store hours? I wish. I wish that diabetes management had like store hours or something. Like maybe Joe''s beta cells could "magically" come back to life from 9pm to like 8am. Ya know? Like every night Joe''s glucometer and insulin pump and CGM could put up a "CLOSED" sign. Yea.right. What is 8/24? I believe it is one third. I believe it is one third of our 24 hour day.
BETA BUDDIES Laundry Detergent Aisle, Pet Store, Party City?
| FRIDAY, JULY 26, 2013
Last evening. As the Schnauzer Party continued.with the post dinner~leash~tangling~excrement~depositing~and streaming~and~spritzling stroll around the ''hood. ?. I spared you the "depositing, streaming, and spritzling". Me to Dave: "The instant feedback from the DOC is invaluable." ( most recently in reference to pumping insulin with the Omnipod ). As many of you know, we were having adhesion issues with the PODs.
BETA BUDDIES Glad To Do The 4am POD Change?
| THURSDAY, JULY 25, 2013
We are currently having a Schnauzer Party. You see we have Oscar ( salt and pepper ) and Henry ( the black one ) and we are dog sitting Cooper ( the party mix ). A couple of nights ago. on Cooper''s first night at our house. I woke. It was 4am. It was my night off from the blood sugar check. Dave was standing at the foot of our bed saying something about us having a "situation"; I think he said we had a "couple of situations" actually.
BETA BUDDIES Insanely Hungry
| WEDNESDAY, JULY 24, 2013
"I think I''m low." ~ Me ( not Joe ). This took place a couple of evenings ago. I had just checked Joe and he was 63. Glucose tablets x 3 were munched and crunched, as we stood in line to await admittance to a Lake Monsters game. I had a headache. I was agitated. I was grumpy. My right inner ear hurt. The crowd noise was un-focusable like a nagging peripheral whine. I was considering jabbing my eyes out with fiery hot pokers. Joe kept peppering me with "I''m hungrys!" and "What time is its?!"
BETA BUDDIES "Good"?
| MONDAY, JULY 22, 2013
My vision was tunneling, the periphery clouding. I had to hunch myself over a bit in an effort to avoid passing out. I was hoping the lady would stop talking and move on. The lady was an acquaintance-y friend of mine. She is the mother of one of Joe''s school-mates. I had not talked to her in a couple of years. I had just popped off a 5 mile run without hydration. The humidity and heat were elevated. It was on July 4th.
BETA BUDDIES Dog Food Arm
| SUNDAY, JULY 14, 2013
"Here it is.you can get it in different sizes to wrap up their paws.". Ahhh.it is for my son. he has diabetes. it is to secure his pump site. cheaper than the human stuff.". was at Pet Food Warehouse a few days ago. buying Vet Wrap (thanks Heidi ) to secure Joe''s POD until the Skin Tac arrives (thank you Penny ) and the Band4Life ships (thank you Marla). His arm is now covered in this green polka-dotted dressing and smells like dog food.
BETA BUDDIES Drowning Out The Beep
| TUESDAY, JULY 9, 2013
"Just crank up the radio Mom. you know. to drown it out.". Dear Lord the BEEPING. The Lumineers'' Stubborn Love was cranked up a few levels. The beeping was still piercing my tympanic membranes as we headed home from Joe''s first day of Tim Thomas Hockey Camp.yesterday. The POD, according to the alarm history, had stopped delivering insulin for about an hour and a half prior. Joe could not hear the alarm, as his elbow pads and shoulder pads and helmet all must have muffled the sound.
BETA BUDDIES I Offered Him Some Baby Oil
| MONDAY, JULY 8, 2013
A week.or while at the local pool. I had met a POD Lady thanks to my friend''s astute eye in detecting diabetes paraphernalia. Chairs and children were immediately navigated in order to make initial contact. I asked the said lady if her "device" was an Omnipod; she confirmed. I shared that my son was going to try out the POD in a few short days. That was about the extent of our first encounter. A few days ago. again. at the local pool. "I''m
BETA BUDDIES Retro-BUDDIES: The One Where I Coulda Used A Twist-Top
| THURSDAY, JULY 4, 2013
As we re-mediate Sharkie''s placement in Joe''s mouth and deal with a new Pump and never used site tissue (Joe''s arms), we have experienced our share of LOWS. Now that Starbursts are considered contraband, we have been using juice as "medicine". The straws are a problem (following post depicts the issue ). Anyone know of a 15 gram juice with a twist top??. *. The bulky, clanking, clamoring dog vomit doused carrier was hogging up the passenger seat.
BETA BUDDIES Losing The "Visible" LEASH
| TUESDAY, JULY 2, 2013
While "Cutting The Cord" has a nice ring to it, I think perhaps they could also name it "Losing The Leash". Joe switched from the Animas Ping to the Omnipod yesterday.?. ?. Originally. six and a half years ago. when I chose a pump, I was making that choice for a three year old. I was making that choice for a three year old on very minuscule amounts of insulin. I chose Animas because of the pump''s ability to give basal insulin in 0.025u/hour increments.
BETA BUDDIES Sharkie
| SATURDAY, JUNE 29, 2013
A couple of mornings ago. I forgot that he was going to be getting them. I remembered, yes.that the Orthodontist said that he may need a few braces on his top teeth to pull the disobedient tooth forward. The Orthodontist stated that the said tooth would need to be shoved or pulled into position to prevent future possible "pulling" of the tooth and for "cosmetic" reasons to keep Joe''s self-esteem intact. I then proceeded to call Joe "Sharkie" ( a nick-name I had given the tooth ).after
BETA BUDDIES "Joe, 911 Cannot Help You With Bolusing"
| WEDNESDAY, JUNE 26, 2013
Yesterday. ( a couple of summers ago ~ this is a repost because it is one of my favorites involving the phone and camp ) I was shaking my head a bit, in disbelief, at myself, dressed in black yoga pants, a long sleeve shirt, with a jacket tied around my waist. I was dripping with sweat. It was 90 degrees. I was driving Joe to a rink. Looking in the rear view mirror, I saw Joe peering down at his phone; thinking about camp I assumed. He then started pelting me with questions. "So,
BETA BUDDIES Today I Remembered The Shin Pads!
| TUESDAY, JUNE 25, 2013
Before we get to Joe, Bridge got ahold of my phone the other day. Here is what I found: OK.onto Joe: A youngish lady was standing at the back of an SUV parked at the field entrance. She was checking in campers, while another fella sat on a fence post handing out soccer balls to each attendee. Thought feed went something like: *Nah.I don''t think this is where I tell them about the diabetes business*. They instructed us to moved on down a wooded path to the fields.
BETA BUDDIES Too Many "Special" Things?
| SUNDAY, JUNE 23, 2013
A quiet, drawn out plea of "Stay. came from Joe. You want me to read some of our book?". It was last night. His blood sugar was a bad 39. Not that there is a good 39, but the "bad" means he was really feeling the 39. His eye lids were closed. His lanky bod was twisted up in the covers, curled tight in my bed. He was motionless. At times it was difficult to tell if he was still "with me". As I read "Catching Fire" aloud to him, I would check in with a."Joe, Joe, you ok?" every few paragraphs.
BETA BUDDIES Holiday Havoc
| SATURDAY, JUNE 8, 2013
Over the years. more specifically over the holidays of the years.even more to the point the holidays with magical bunnies and gray bearded men sporting pannuses ( or panni? for pleural.a pannus is that flap of belly skin that can hang down like a pouch ) we have ran into an issue that yep, you guessed it. an issue that involves diabetes. And, no, it isn''t about the food, the candy, or the change of schedule and routine. It is about the night check.
BETA BUDDIES Going Well!
| SATURDAY, MAY 25, 2013
I promise I did not "wear" the headlamp as I dropped off Joe to his friend''s house for the sleepover last evening. However, for your viewing pleasure I did. I thought the "head lamp" was a thoughtful token for night-check-ease. Salami and pickles were brought for Joe''s snacking pleasure to veer him away from heavy carb snacking into the night. In general, Joe does not eat carbs after dinner. So far so good. I have not heard from Joe or Joe''s-friend''s-mom since 10:30pm last night.
BETA BUDDIES Freak Show
| FRIDAY, MAY 24, 2013
"If he is unconscious or has a seizure - Glucagon is in his camo bag OR call me and I''ll run over and give it. AND call 911". Yeah, so writing that part seems a little over-the-top.but what am I to do? It could happen. I like how I added in the part of just calling me so I could "run over" and whack him with the Glucagon. It is so very difficult to not appear like a freak show. To top it off I am sending Joe over with a jar of pickles and salami-wraps for "free" snacking into the evening hours.
BETA BUDDIES "HHH.e.l.p."
| WEDNESDAY, MAY 22, 2013
Literally thinking of " Cutting The Cord ". more on that soon. he ( a.k.a. Joe ) told me that we might need to leave a door unlocked for you. ah, so you could come in and check him in the middle of the night." ~ Joe''s-friend''s-mom to me. I paused to see what her reaction was going to be so that I could, in turn, mirror it. She started laughing. So, I then started laughing. Little did she know, I would do that "PLAN" if it seemed "normal" and "OK" to her.
BETA BUDDIES I Don't Have All The Answers
| MONDAY, MAY 20, 2013
"I knew about the highs and not taking care of my diabetes and losing arms and legs.but I did not realize I could feel so sick." ~ Joe talking to me about his death~ate~a~cracker ketone sickness feeling from the other day. ".so so without insulin, would I just feel like that? I would feel that sick until I died?". Uhh oh. Not the dying business. Please don''t ask. Please don''t ask. Please don''t ask.*. How long do ya think that would go on for? The dying? A year?". *Oh Oh hhh Man.*. *Of
BETA BUDDIES Fickle D'
| SUNDAY, MAY 19, 2013
"What was he?" ~ Dave to me at 3am. My "one-eye" started to close and then I thought perhaps maybe I should ask why he was asking. My "one-eye" reopened ~ "Why?". Dave''s sleepy voice yammered off something about 9 glucose tabs and something about the 40s. Me ~ "oh, I forgot to tell you that I never bolus for all of S''mores. just half. he always goes low after eating them.". Joe had a rough diabetes day yesterday. 6:54 am 337. 9:06 am 306. 10:05 am 319 (ketones 3.9). 11:18 am 248 (ketones 2.4).
BETA BUDDIES An Hour's Time.
| SATURDAY, MAY 18, 2013
The numbers never cease to amaze me. How quickly they can turn on you; for the better or for the worse. 10:00 am-ish today : BG: 319 Ketones: 3.9. Site was removed; cannula was kinked. Supposedly Joe had been in the 300s since 6am. I never checked in with him about his pre-breakfast number until now ( head hangs and shakes from side-to-side in shame ). New site was place. A "correction" of 2.3 units of insulin was given. How long will this last?" ~ Joe to me.
BETA BUDDIES The "One-Eye"
| SATURDAY, MAY 11, 2013
I think I was pulling the "one-eye". you know.the middle of the night check "one-eye"? It is where I only open one eye so that I can traverse the walk to Joe''s room and sift through his d'' supplies to grab a blood sugar check, while tricking myself that I am still sleeping b/c one eye is closed. I think I was pullin'' the "one-eye" at 6:07am this morning as I stumbled back into my room.from Joe''s. Dave to me: "What are ya doin''?". Me: "Just checkin'' to make sure Joe was still alive.he
BETA BUDDIES Cyclone Holding A Chicken?
| WEDNESDAY, APRIL 17, 2013
My message to Joe''s school''s attendance line, which is manned by a friend, this morning (names have been changed for "privacy-sake" ): "Hi Lucy. Joe will not be at school today. He is still feeling under the weather. He will, however, be at the play again tonight as long as he doesn''t spike a fever. George ( Lucy''s son ) made a great monkey last night!". Joe''s school of fourth and fifth graders have been working diligently over the past several weeks to put on "The Wizard Of Oz".
BETA BUDDIES The Dreaded "No Parent Zone"
| SUNDAY, FEBRUARY 17, 2013
The "No Parent Zone" sign, printed on neon green backing, increased my anxiety level a bit. I explained ( or tried to, but how on earth can anyone "get it" unless you live it ) to the registration lady that Joe had Type 1 Diabetes and that I needed to talk to his instructor, give him some sugar, and have an idea where he will be on the mountain before I can remove myself from the "parent-free" zone. Joe was on skis for the first time in his life yesterday.
BETA BUDDIES The Interrupter, Refuser, Moper.
| SATURDAY, FEBRUARY 9, 2013
Pre-post Note: Joe does not get into trouble at school.? This is an unusual event, where.in my opinion.the "low" trumped the reasoning for his visit to the Principal's Office. "I I thought it was all my fault mom.". was stated in the sweet, soft, lispy Joe-voice. "I I did not even think about my low or that the teacher would not let me see the nurse.". This infuriated me even more; Joe blaming himself. Joe's daily log came home tucked in Woodchuck. His numbers were documented.
BETA BUDDIES Yep, Still Alive
| SATURDAY, FEBRUARY 9, 2013
First off, Hellllloooooo out there!!! Yes, Yep, un-huh, of course, absolutely, positively. Joe, Bridge, and Dave, and I. we are all still alive. Here is what has been going on: I got a job as an Elementary School Nurse. I took down The BUDDIES for awhile because I wasn't sure about my language choices and the school nursing (elementary school nursing, none-the-less) gig. But, ya wanna know what? I wrote those posts as part of our story in living with diabetes. so, I am leaving them up.
BETA BUDDIES "I Take Full Responsibility Mom" ~ Joe Maher
| TUESDAY, OCTOBER 16, 2012
I have written on the BUDDIES to humor, to help, and to let other Type 1 families know "same-same". Our daily grind goes unnoticed by most. Our "dangers" of activity and food and the lot seem silly to those living the "normal-normal" and not the "new-normal" that we endure. Today. Today we had a bit of a scare. Right now I am writing because I believe today taught me some valuable lessons; things that I would want to share.
BETA BUDDIES Welp, He Did Good. I Did Not.
| SUNDAY, SEPTEMBER 30, 2012
We're up. Been up since 5:30, avoiding the breakfast IOB.Joe's tryouts are at 8am. Last night, as Joe went to bed, I asked him to wake me when he woke in the morning. Told him that I would get his breakfast ready right away.plan was to hopefully feed him before 6am. Breakfast, bolusing, and morning hockey have notoriously been problematic for us over the years. Joe's body seems to be extremely insulin resistant with his first bolus to cover carbs.
BETA BUDDIES Never Let Your Fear Decide Your Fate
| SATURDAY, SEPTEMBER 29, 2012
60 minutes or so.ago. Driving back across town to buy a 564xl black cartridge for our printer. Gotta have Code of Conduct printed and signed and Medical Form printed and completed by 3:30pm today.for Joe's hockey tryouts. While driving, I am on the phone "directing " Dave, who is manning Joe. Feed him something now. I don't want to go into tryouts with IOB if we can avoid it." I've said it once and I'll say it again.never, never, never underestimate the power of IOB. You see, I am nervous.
BETA BUDDIES D' Diligence
| THURSDAY, SEPTEMBER 27, 2012
This just in. By the way, I am grumpy.have a cold. Car ride home from school, about 10 minutes ago. Me to Joe: "You ordered the school lunch for the field trip tomorrow. Right?" ( We filled out forms for the all day hike a couple of weeks ago.
BETA BUDDIES The In-Between Place
| WEDNESDAY, SEPTEMBER 26, 2012
11:58pm last night.on the heels of the news of another child lost, at the age of 13, to Type 1 Diabetes. I hear it. Is it part of my dream? As I lay there in some sort of state between wake and sleep, I try to figure it out. The sound. What is it? Then it stops. My mind rests. I slip back into sleep. It starts again. I hear it. My body and mind struggle with the sound; having a difficult time placing it.
BETA BUDDIES Cranky Pancreas
| TUESDAY, SEPTEMBER 25, 2012
Yesterday. Another first. Joe walked to the "Tween Center" after school (yes, he is only nine.apparently they are called "tweens" these days). The Tween Center is where he and his 4th and 5th Grade pals can go and "hang" for a couple of hours after their school day. The plan was for him to have his phone on. He was to call me with his blood sugar number and the carb count of the snack that was to be served at the Center. (
BETA BUDDIES Foul Fowl
| SUNDAY, SEPTEMBER 23, 2012
Yesterday. Dexter was double-up-ing, Joe's blood glucose was in the 180s. I smacked him with a 50 gram bolus, straight up.and added a few tenths of a unit for good measure. Yeah "exact science". That may cover half of it, then I'll figure out the rest once I know if he is gonna eat it all. It's gotta be like a good 120 gram-er or so. Dave plopped down at our table and gave the carb count a guess. He guessed 70 grams. Me, my thought feed went something like "do monkeys fly outta my butt?".it's
BETA BUDDIES KinKy In The Car
| FRIDAY, SEPTEMBER 21, 2012
5:50a.m. this morning.Dexter was donging-off for "LOW", Joe was actually 223. I corrected and planned on changing Joe's site when he woke. It had been in since Monday ( that is a long time, I usually change him out every two to three days ). I also made a mental note to rip out Dexter. He was dead to me. About an hour later, still wearing his clothes from yesterday, jeans and a long sleeve tee, he was snuggled in his bed with our Miniature Schnauzers. How was your sleep bud?".
BETA BUDDIES A Mess
| THURSDAY, SEPTEMBER 20, 2012
Ugh.It was a mess. It started with Joe rolling up the BETA BUDDIES Book and kind of sitting on it. He did not want the class to see his picture on the cover. I think he looks CUTE here. So, Joe and I presented Type 1 Diabetes to his class yesterday. I think, well I know that I embarrassed Joe. I left his school feeling pretty bad, sad, and mad. Mad at myself for not choosing my words more carefully. Disappointed in myself for still crying.
BETA BUDDIES Skimming The Skittles
| WEDNESDAY, SEPTEMBER 19, 2012
Not sure why I thought the top of the Ferris Wheel was a good place to initiate the discussion. Perhaps I felt like it provided me with a little "intimidation factor" with the questioning of Bridget and Joe. Again, not sure why you guys read this blog. Clearly my parenting tactics should be called into question. FERRIS WHEEL. JOE ON FERRIS WHEEL. BRIDGET ON FERRIS WHEEL. CHLOE (my niece) AND I ON FERRIS WHEEL?.
BETA BUDDIES SIX
| TUESDAY, SEPTEMBER 18, 2012
It was six years ago today, at about this very time that I was driving Joe to his Pediatrician's office. It was there that his urine was dipped and sugars and ketones were detected. It was then that he was diagnosed with Type 1 Diabetes. An important day that changed our day-in-the-life. dblog type 1 diabetes blog Diagnosis