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- Blog - Repost - This is Type 1, This is why we walk.
On October 21, 2014 Justice will have had Type 1 for 6 years, 1/2 his life. On October 25, 2014, we will walk in our 6th walk to cure diabetes. I won''t lie, the donations are scarce. No one has asked if they can tag along, or when the walk is, or what they can do. Not like the years past. I think people think as time goes, on it gets, easier, and we don''t need the same amount of support. That could not be farther from the truth. I wrote this post a few years back. It is still true.
- School accessories. - Medical ID
I am so excited for back to school. Said no Dmom EVER. Truth is I am always a mess before 504 time, and somehow it always works out just fine. J''s D kit is packed and ready, his class containers with candy and snacks are packed, 504 is written, doctors orders signed. But one thing that is always a headache is getting J to wear a medical ID. So when I was approached by N-Style ID''s to try out their medical ID and share my thoughts, I thought wow perfect timing!
- Camp Empowerment
If you know me you know I am definitely a helicopter mom at times. So whenever I was asked if I would send Justice away to diabetes camp. my automatic answer was always no. To be honest and in all fairness he wasn''t ready either, he never showed interest until this past year. In April 2014 J got a JDRF YouthAmbassador scholarship to attend his first ever diabetes camp, camp Vegas.
- #Dblog week Day 6
"Click for the Saturday Snapshots - Saturday 5/17 Link List. Back for another year, let’s show everyone what life with diabetes looks like! With a nod to the Diabetes 365 project , let’s grab our cameras again and share some more d-related pictures. Post as many or as few as you’d like. Feel free to blog your thoughts on or explanations of your pictures, or leave out the written words and let the pictures speak for themselves."
- #Dblog week - Day 4 - Rinse and Repeat
"Yesterday we opened up about how diabetes can bring us down. Today let’s share what gets us through a hard day. Or more specifically, a hard diabetes day. Is there something positive you tell yourself? Are there mantras that you fall back on to get you through? Is there something specific you do when your mood needs a boost? Maybe we''ve done that and we can help others do it too? Thanks to Meri of Our Diabetic Life for suggesting this topic.)"
- #Dblog Day 3 - Letting It Out
May is Mental Health Month so now seems like a great time to explore the emotional side of living with, or caring for someone with, diabetes. What things can make dealing with diabetes an emotional issue for you and / or your loved one, and how do you cope? Thanks go out to Scott of Strangely Diabetic for coordinating this topic). As a mom of a child with diabetes I sometimes feel guilty for saying the following things. Truth be told, diabetes IS a family disease.
- Day 2 #D-Blog Week Poetry
Day 2 - This year, Diabetes Blog Week and TuDiabetes are teaming up to bring out the poet in you! Write a poem, rhyme, ballad, haiku, or any other form of poetry about diabetes. I used to write a lot of D poetry when J was first diagnosed. One of my favorites and most important was one I wrote for newly diagnosed. Here it is again.for new and not so new family. For New Travelers". There is a road many know little of. One they never think they will travel.
- #DBlog week Day 1
Today’s topic: “Let’s kick off Diabetes Blog Week by talking about the diabetes causes and issues that really get us fired up.” We''ve been dealing with school and diabetes since 2008 and every year I think it''s going to get easier. Every year, every year I am proven wrong. Dealing with misconceptions, wrong information and just plain stupidity, to be honest, can be a hindrance in dealing with the normal obstacles of a new school year.
- He NEEDED This.
J was awarded a scholarship for camp through our local JDRF. He was eligible because he is a Youth Ambassador, and has performed the necessary hours volunteering for JDRF. There were some other requirements as well, and an essay explaining why you deserve/want to go was part of the application as well. I would like to share with you all part of the essay, the part that after I read it, made me realize my own fears and anxiety didn''t mean anything. He NEEDED this, wanted this and deserved it.
- If We Can Do This.
Justice is at camp!! He arrived a day late and literally walked in there and said " ok guys! The party is here!!". Love this kid. Huge step for us. Can''t wait to update with his adventures when he gets home
- Worse than Diabetes?
Back in September J was diagnosed with low IGA also known as immunodeficiency disorder. To be honest I kept thinking "right, another thing we can handle it", and we can but little did I know that it would be more of a nuisance in our lives than diabetes. For years on and off we saw a sore throat or random tickle in the morning or runny nose, all things that kids get. Cold are innocent and nothing to worry about, we thought.
- The Hole
It''s like you''re falling into hole and the more you try to get out the deeper you fall. I guess it''s like quicksand you''re stuck but you''re so desperately trying to reach the outside world. It doesn''t work, you just get pulled in, faster and faster. Logically you know that nothing''s wrong but the thoughts consume you and so does the worry, the more you try and work it out in your head the worse it gets. It''s lonely, and isolating.
- Fit for a Superhero!
We are loyal Tallygear customers. Love love love their D accessories and gear. Tallygear has been ensuring J''s comfort since he started pumping, while letting him express his individual style. Whether it''s for Dexcom or pump, Tallygear always provides quality products that cannot be surpassed. J got the new comic themed Dexcom case (which matches my blog background!) and an awesome T1 button for his kit. Diabetes is part of him, who says he can''t make it stylish?
- I Survived.
Both my babies are home, and snuggled in bed. It''s amazing how people think I can sleep because J isn''t here to check. The worry and internal alarm still goes off, and I honestly slept less than I do when he''s home. I feel whole again. - don''t judge me, it''s just who I am, and how I am. Back to J, he went. He laughed, he played, he''s skated, he went low, he rebounded high, he temp basaled, he bolused, he did it all.
- Trial Run - It's Hard.
J leaves to diabetes camp on 4/14, he has received a scholarship through our amazing local JDRF for all his work he has done as a Youth Ambassador. I''m scared. Nights are gonna be hard for me. J, while insulin resistant at times, is very sensitive to activity, keeping me on my toes anytime there''s a sport or horseplay. Well tonight is another first for us. J is going to his friends house, for his first SLEEPOVER.
- "Take it. Share it. Step Out.”
While my blog is dedicated mostly to type 1, and my love and work with/for JDRF, I would like to draw focus today to Type 2 diabetes and a great campaign the ADA is running. Both my husband, father, and grandfather are type 2. While the disease origin or management may differ from t1 the struggles, complications, and stigmas are the same.
- Waiting Game
Day 2 - I think I can do this photo blog thing, it works with my hectic schedule and lack of sleep brain. Oh yea sleep. Remember that time you yanked your kids sensor cause it was wrinkling and starting to smell like sweat, stuck it on the couch, then couldn''t find it, then realized the dog had it in his mouth and dropped it somewhere, and it''s now 10pm so you gotta stay up for calibration, cause you never hear those low alerts for enter two bgs?
- Let go, and Trust.
J is independent. He is doing it. He is owning it. I was scared to lose control of every number, bolus, and decision. Buuuuut looks like he is going to so just fine. a conversation with Bob, Mike and Kerri M. inspired me to start blogging again. I don''t have the time or sometimes coherency to write full out posts, so I decided on a pic a day (or every other) with a small caption. Some failures, some victories, some worries and some just because. Thanks for reading as always
JUSTICE'S MISBEHAVING PANCREAS Where I Was.9.11.01
| WEDNESDAY, SEPTEMBER 11, 2013
(I posted this on my personal blog but thought it should be viewed by all). Its no surprise to most of you I am a born and raised (insert OBNOXIOUSLY PROUD) New Yorker. Born in Brooklyn, raised in Brooklyn and I''ve lived in every borough for atleast a few months, and worked in the city (Manhattan folks), for all of my working years. What some don''t understand is NY is not just a city or state. Its not just where you''re born, live, or are from. Its who you are. It breeds soldiers.
- Crying Together
3 years ago, my amazing friend Laura (Houston We Have A Problem, check her blog out if you haven''t), wrote a blog about why she still cries. Why this disease is b t. Today she reposted it, and at a time, and day where it resonated with me, as much as it did the first time I read it. I can''t get his sugar down. I can for a moment and then it''s back up. Let me explain some of the b t variables we had this week, shall I? TWO bad pumps. No you read that right, TWO.
- I miss it.
Family is in town, the excitement and joy of seeing my mom and siblings is beyond words, for the boys too. I expected pinsanity, bickering, fighting and loads of chaos with 4 boys under 14 in the house, but I wasn''t prepared for everything else. I am watching my brothers, who are my boys age, just eating, sleeping, playing with no worries, no concerns or hesitation. Just doing what they want as they want.
- Things to remember. For all of us.
I''m not a doctor, a nurse, or anything professional. Just a mom, who breathes Diabetes and has learned some stuff along the way. Just a number. High or low, that''s all it is. It does NOT define you, your child or how well you''re doing. It tells a story. It tells you what your next move is, but that''s it. So correct, or treat, and move on. Never say "you can''t". Say not now, lets figure it out, first lets do this, ok what should we do first, well is it necessary at this moment, and so on.
- Deliriously Funny, I Guess.
Apparently no sleep is bad for me but good for my sense of humor. I mean really, in order to survive this diabetes life we all are living, there are a few things we need. 1) Good friends (YES YOU) 2) The ability to laugh when all we really want to do is cry and 3) Apparently Lora’s husband’s mojitos. Yesterday I was more tired than usual. I didn’t go to bed till 2am , and an occlusion at 5:30am woke me up to a sweet boy, sleeping next to me, rocking a bg of 452 and ketones of.8.
- Wordless Wednesday - That's Why!
- Joining Forces.
Wow I feel like I almost forgot how to blog! I have been so bad on keeping up with it. To anyone still here, thank you! I have been so busy these last few months with taking care of Alexis, amongst other things. One of those things is probably one of the most important things I have ever had the privalege of doing for the Diabetes Community. It is an offline position that I have been able to actually bring to online as well.
JUSTICE'S MISBEHAVING PANCREAS Wordless Wednesday -JDRF and the DOC
| WEDNESDAY, FEBRUARY 27, 2013
- Dark, Cold and Lonely. #ManicMondays
I always say I hate diabetes, how it's the worst thing in the world, how it takes away my joy some days and sleep. But I have to be honest, and lynch me if you like but one thing I always will do is keep it real on my blog. Anxiety and hypochondria is worse. For me it is. I see J have a low or a high, and he treats/corrects and moves on. He doesn't dwell, or worry about what it will do to him, or if it will happen again. I have even learned to treat, correct, and move on.
- 48 questions about Lexi?
Meri went first, and I thought I wanna join in! Cherise my friend, cupcake lover and DSMA founder suggested the DOC answer these questions to get to know one another better. So here goes. WERE YOU NAMED AFTER ANYONE? I am an 80s baby named Alexis, any guesses? ;) 2. WHEN WAS THE LAST TIME YOU CRIED? 2 days ago, and anxiety attack. DO YOU LIKE YOUR HANDWRITING? I do, but my hands get stiff fast and then it looks like crap. WHAT IS YOUR FAVORITE LUNCH MEAT Hmm.
- Sugar High Sugar Low, by Justice
Sugar High Sugar Low Prick, prick, I do it by a click. That is my checking blood sugar trick. I feel low low, but my meter says no. I say aw shucks, I really could go for some pop rocks. DEX says high high, that makes me sigh Now it's time to check my site But with some insulin High blood sugar I can smite! Now Dex is 130 flat And I can sure rock with that
- Wordless Wednesday - I am one of the faces of Type 1
- Guest Blog Repost - Sugabetic, and D Team Effort
This post is about 2 years old, but still one of my favorites. Today on twitter we were discussing parents giving their kids money for a bg of say "100". There were many opinions, strong ones at that on the subject. I will share those perhaps tomorrow. But today I want to take a look back at this wonderful blog by an amazing PWD, who knows her stuff. Over the last few weeks I have become insanely, even creepy close with Sarah of Sugabetic.com.
- Any advice? Why yes.
Prompted by a wonderful newly dxed family, and Type One Nations recent status update, I do have some advice for those new to the D. I'm not a doctor, a nurse, or anything professional. Just a mom, who breathes Diabetes and has learned some stuff along the way. Just a number. High or low, that's all it is. It does NOT define you, your child or how well you're doing. It tells a story. It tells you what your next move is, but that's it. So correct, or treat, and move on. Never say "you can't".
JUSTICE'S MISBEHAVING PANCREAS Finding Normal.
| WEDNESDAY, DECEMBER 19, 2012
Wow, I haven't blogged in so long and I think people have stopped reading my blog, which makes have a sad. It started because I was locked out of blogger which is why I didn't write at first, ( and haven't been able to access my blog reading list and comment as me, preventing me from reading blogs i love) but then I realized I haven't had much to write about. Why is that? Normal. I feel normal. Not in all aspects of my life, but at least when it comes to Diabetes.
JUSTICE'S MISBEHAVING PANCREAS Special Sib of a D Kid Day- My Sweetest Synsyre
| WEDNESDAY, NOVEMBER 28, 2012
Today is Special Sib's of a D Kid Day! A day dedicated to those AMAZING siblings who support their brothers, and or sisters with their diabetes. From waiting to eat until a bg comes down, grabbing a juice box, or just being there to witness all the heartache diabetes can cause. Many times these siblings are also left feeling like they may come in second, or aren't give as much attention because of diabetes. We want them to know how amazing, wonderful and fantastic they are.
JUSTICE'S MISBEHAVING PANCREAS D Sibs Day Reminder!!!
| SATURDAY, NOVEMBER 24, 2012
It's almost here.it's s coming. Do you have a sibling who is your support system? Who has been there for you through the ups and downs (literally)?! Does your child have a sibling like that? If so help us honor them! We have dedicated one day of Diabetes Awareness Month to these special siblings! Whether you blog,Facebook, tweet or do You Tube videos you can participate! Tell us about this special Sib,what makes them special and how they support you or your D kid. Share pics, stories and more!
- #DBlessings Week -Family
This week is DBlessings week, which is an awesome initiative which was started by my friend Mike of My Diabetic Heart ([link] This week we turn to discussing how Diabetes has blessed our lives, I know say what!? But the truth is my life is richer in many ways because of D. Truthfully it's not the disease itself but the people that that also live with it. They are amazing. Each one. Adult with D, child with D, parent or caregiver of, wife or husband of.
- Thanksgiving for us.
I originally wrote this post 2 years ago, when we were going through a tough time after layoffs. Guess what? We are there.again. I was let go in September they say because of mine and Justice's constant health issues. I'm on the hunt for a job but in the meantime things are rough. Why does this always happen right before the holidays? No clue. With all the commercials, ads, and posts about Black Friday I though this was a good post to take a look at again.
- #Dblog Day guest post by Justice
Taken straight from the gorgeous Gina, an amazing person with diabetes and my friend who happens to have had the most adorable and cuddly baby this week.(congrats congrats mama!!!) "**D-blog Day was started on November 9th, 2005 during Diabetes Awareness Month, to help unite diabetes bloggers and to create awareness about diabetes.
- J and J - 4 Years!
- Why I Cried.
I used to cry a lot. Highs, lows, bad sites, every now and then they just get overwhelming and I break down. But it hasn't happened in months, I am happy to say that. Yet sad as well, as it seems I am almost numbed by this disease now. It's become our normal which is good but still heartbreaking to a degree. But I've been, we have been, pushing through. Doing what's needed and moving on.
- Anxious You.TODAY IS THE DAY.
Lately my struggles with anxiety and disease phobia have taken a huge part of my blogging here. I think it's fair to say diabetes has created a monster. The struggles of diabetes are obvious to a cross eyed duck, we all see them. The endlessness of it all. The checking, counting, lows, highs, emotional and physical toll. But it can go much deeper, and for some of us it does. A few months ago I shared a video about what I have been dealing with since Justice's diagnosis.
- #No D Day 2012 -repost
I love No D Day, I do. It is a day created by one of my favorite people ever, George aka Ninjabetic aka awesomeness! Wish I could link but my app sucks! It's a day to discuss things other then D. I won't even say the word. I've been going through a lot and I was looking back at my past posts for inspiration, when I read this one I knew I had to repost it. As I am going through the exact same thing right now, except my age has changed. So with a few small edits, it's perfect. So here it goes: Hi.
JUSTICE'S MISBEHAVING PANCREAS Baby Steps.
| WEDNESDAY, SEPTEMBER 26, 2012
Deep breath. I can do this. I can. I am trying anyway. Sometimes I need to to hide out, away from the blogs, tweets and Facebook updates that are just too much for me to handle. Sounds awful I know, I am sorry. Anxiety and phobia is real and for me that means I internalize other people's illness, loss and struggles. I try to be there for every heartache, every virtual hug needed and every rough patch but I have realized I am neglecting someone. I am not mentally healthy enough to handle it all.
- That Place.
Maybe writing it out will help? Maybe taking a break from online will help? Maybe deleting Google from my phone will help? Discussing it with friends? Baths? Swimming? Massages? Breathing exercises? 80’s music. A pint of ice cream? Yea I have tried a lot of s**t. Nothing really helps. I am in a bad place. Mentally and physically. Diabetes is being a piece of m **g s**t. Sorry folks but it had to be said. We are talking about changing basals, ISFs, and carb ratios at least 5x.
- Guest post: from Justice, low.
Diabetes just messed up my life today.It made me think I was low when I was not.It made me so Mad!!!!!! I couldn't even say a word!;(.Then Then I was perfect-o , Beep!!!!!!Beep!!!!! Beep!!!!! dexcom alarms that I'm low and dad said" check your sugar". I check my sugar and it is 56 and I feel like throwing a fit. And that is why I am writing this now. The End
- What It Is To Me.
I would consider myself an advocate, an amateur blogger, an avid (when I can) tweeter , an advanced-probably needs a break-facebooker and a member of the most elite group I know of. the D.O.C. But what does that really mean? For me, for you, for her, and him? This conversation has come up many times, but this weekend it was THE topic on a lot of social media outlets.
- Finding my words.
If you cant deal with someone venting or having a bad day, keep on. I am human and some days I break down. Today was one of them. I'm tired of crying. I'm tired of being scared. I'm tired of feeling anxious. I'm tired of not letting my kids be kids. I'm tired of not being a just a wife. I'm tired of not being just a mother. Im an axious mother and anxious wife. I'm tired of not being able to sleep. I'm tired of when I do sleep I dream of the what ifs and what nots.
- Wordless Wednesday - D Pals Make Everything Better
**photo credit Candyheartsblog.com
I try hard not to lose myself in the sadness and heartache that so often comes with diabetes. I used to all the time. Now I try and see beauty,the blessings and the amazing family it has brought into my life. But then there are nights like last night. Justice went back on his pump and was excited, as was I. I missed the ease of bolusing, the temp basals and the iob was the hardest part being without.
- Vegas, Friend for Life
So I didn't make it to FFL, and to say I was bummed would be a complete understatement. I cried. I was so happy for everyone who went don't get me wrong but I actually missed these people who I have never met before. Crazy huh? Not really. They have been my back bone, my friends, family, my shoulder to cry on, friend to laugh with and partner on D crime for the last few years.
- Wordless Wednesday - He got it.
- A Necessary Repost - It is so much more.
When I say Justice was 59, 200, 43, 499, 29, 113, 143, 178, most people see a number. Unsure sometimes whether its good or bad, or thinking "that's high." or "that's low". A number for us is so much more. I hate to say it defines us, but it defines the moment. At that moment when we see a number pop up on the screen after just 5 seconds, its as if we feel a shift on our entire universe, that lasts way longer. That moment changes things.
- Why So Heavy?
This was not an easy thing to do. I almost didn't post it. Thank you Katrina Huckabay, George Simmons and Michelle Litchman for the push to hit publish. This is as raw as it gets. No make up, no hair did, in my PJs, and exposing a side of myself only a few have seen. Here goes everything
There are days where it just weighs heavy. Where my eyelids droop and I can feel the tear ducts overflowing. Where I can't bare to think of another finger poke, site change or low. Where I don't understand how and why we are here. Why my sweet baby was given this disease, and what the purpose of it really is. Sometimes it takes all the strength I have to make it though the day without crying. Some days worse than others. I fear another diagnosis. I fear another disease.
- Summer has arrived!
Holy crap. I have missed blogging!!!! My awesome dad got me an iPad for my birthday which means.no more blogging from a phone!! Anyhow. So much has happened and I will cover that shortly but can we talk about summer bgs for a moment?? OMG HOLY CRAP!! I forgot how hard swimming can be on bgs. Justice has a verY high sensitive to being off his pump. His bgs may seems steady but a few hours later high bg and sometimes ketones occur. We have found that he must wear his pump when swimming.
- #DBlog Week Day 7 - My Hero(s)
- #DBlog Week Day 6- Sat. Snapshots - Feat: Ninjas, Candy Hearts, Scotts, & More.
- #DBlog Week Day 5- You Should Know.A Repost.
- #D-Blog Week Day 4- Fantasy Diabetes Advice
- #DBlog Week Day 3- One Thing To Improve
- #DBlog Week Day 2- One Great Thing
- #D-Blog Week- Day 1 - Find a Friend
* As you may know, my computer is on the fritz, and I am left only with my cell phone which used to be fine except well the keyboard is all screwy. It takes 10 minutes to just type out 5 sentences most days, and its a royal PIA. But I had to participate!! Soooo the awesomtastic Karen said it would be welcomed if I completed each #D-Blog week post using just pictures. Thanks Karen and Droid apps! So here we go
- Beautifully Aware - A Guest Post by Cari
As usual I have to keep my intro short and sweet as my laptop keeps freezing, and my cell keyboard is messed up. I met Cari almost 2 years ago on my second home aka DOC flooded twitter. She is as sweet as can be and a dedicated Dmama! She is also very talented. Last night was our JDRF Gala I already knew a few weeks back that I wanted to be decked out in Blue to rep Diabetes to the fullest & it was Blue Friday! But I knew it was missing something.I
People have been amazing. Asking me how I am feeling, what is actually wrong, and what is going on. Let me say thank you. Thank YOU. I can feel it. Everyday. Lurking inside of me. It hurts. It burns. It aches. No matter what I do or don’t do its there. Somedays so bad I cant go to work, and I can't talk without gagging. I have been diagnosed with Leaky Gut Syndrome.
- Wordless Wednesday.Unicorns, Rainbows & Cupcakes.
- A Type 1 Teen Hijacked My Blog!!!
Not really. I'm going to keep my intro short & sweet. My keyboard is broken for 1 and for 2, I love this girl so much I may end up writing till tomorrow. Reed. A type 1 teen with celiac, a JDRF youth ambassador and one of the coolest people I know has blessed my blog with a guest post. Read on, I promise you'll love her as much as I do. She is kickin' D's ass while rocking the Omnipod, and a smile that is contagious. It's all yours Reed.
- A D Mom In Paisley.Learning Her Way.
The endo appointment is done, phew! No not D-Boy's, mine! I have a (double?) confirmed diagnosis of Hashimoto's, and vitamin D deficiency. We are waiting for the Crohn's test result from NJ. Endo is a little less aggressive on adrenal fatigue than natural doc, but saw the labs and agrees mama NEEDS rest and less stress.
- It's My Story Now.
I am not even sure where to begin to honest. I have been contemplating this post for a while, but then realized no one will understand better than YOU. So here I am. I don't want to get into the whole drawn out story, its too long and well I am not emotionally ready. But I knew something was wrong. 4 years ago I went from 200lbs to 140lbs, a size 14 to a size 4., I ate beyond healthy and small meals, added in exercise here and there to keep me firm.
- For The Schumachers.
I am today without adequate words. My dear friend Meri's husband has been diagnosed with cancer. Today we join her beautiful family in prayer. Please take a moment to pray for them. My family sends all their love, hope, comfort and prayers to Meri, her beautiful boys and her wonderful husband Ryan. May God hear all our calls. " May the One who was a source of blessing for our ancestors, bring blessings of healing upon Ryan, a healing of body and a healing of spirit.
JUSTICE'S MISBEHAVING PANCREAS Now Hiring.
| WEDNESDAY, FEBRUARY 15, 2012
Being a (non or working) parent is exhausting enough. School. Homework. Baths. Lectures. Chores. Hygeine. Sibling referee. Mentor. Hiney wiper. Dog tamer. Counselor. And so much more but my mush of brain can't think. Add in nurse. Insulin doser. Site changer. Dex calibrator. Basal adjuster. Bolus thinker. Low advisor. High ass kicker. And did I mention there is no shifts? This is a morning, noon, evening, graveyard job. With no breaks or calling out. Never. Even if you work outside the home.yup.
- I OWN It.
The chorus wasn't enough. Justice wanted a full song. So I sat with him and we collaborated. So here it is. Full video to follow. Fa sho. When I walk on by, My Dex starts to beep.dang Im high. I pump to the beat, walking down the street in my new tummietote, yeah! This is how I roll, skulls, camo skins outta control, Now I need sugar cause im going low. And cause I own it I eat tabs on the go. Girl look at that pancreas Girl look at the pancreas. It dont work.Girl look at that pancreas.It
- And He Knows It.
From a conversation about kids staring at his sensor, to this.He amazes me daily.Seriously he needs a record deal asap
- A Repost - It's More Than Just a Number to Us.
I wrote this post last year, and after having a crappy night with a bg of 360 and ketones of.8 it seems fitting to repost it. Truth always remains the same. When I say Justice was 59, 200, 43, 499, 29, 113, 143, 178, most people see a number. Unsure sometimes whether its good or bad, or thinking "that's high." or "that's low". A number for us is so much more. I hate to say it defines us, but it defines the moment.
- A Repost -- It's not just a number.
I wrote this post last year, and after having a crappy night with a bg of 360 and ketones of.8 it seems fitting to repost it. Truth always remains the same. When I say Justice was 59, 200, 43, 499, 29, 113, 143, 178, most people see a number. Unsure sometimes whether its good or bad, or thinking "that's high." or "that's low".A A number for us is so much more. I hate to say it defines us, but it defines the moment.
- Its Not The Why, But The How.
How I can sit quietly, and allow the judgement, ignorance, misconceptions and false information to continue? How can I pretend that a war is not raging in my child's (and husband, father, granny and friends) body everyday. How can I ignore the fact that 35,000 a year are diagnosed with Type 1 YET doctors still miss the signs, and people are dying due to misdiagnosis? How can I not educate others that Type 2, is NOT just a "lifestyle" disease? How can I not worry for my son's future and yours?
- We Lead The Way.
A Cure vs Awareness. Both are needed, both go hand in hand. Well here is how I see it. The media keeps pushing that diet, exercise and a healthy lifestyle can PREVENT AND OR CURE diabetes. False. While SOME cases of Type 2 can be affected by lifestyle (so many other factors are relevent) that is NOT the end all be all in reasons for type 2 diabetes, and it isn't a factor at all in type 1. How do I know?
- On The Right (GI) Track.
**Update ** Justice's labs were negative for celiac as many of you know, but our endo wanted to do a scope to be certain. We met with the GI doctor last week, and OMG I love him. He not only asked about J but about MY issues, saying sometimes these things are genetically linked. He asked if J's Diabetes was under control (hate that word) and I gave my normal response "Well as you know Justice has type 1 diabetes, insulin is tricky.so controlled isn't the word I use but we manage it pretty good!
- A Repost. I Miss It.
I posted this over. 6 months ago.I guess being back to work fulltime and working opposite schedules of Biggah is taking an emotional toll. Why reblog? This says it all. I'm not sure where this all came from. All these feelings are pouring out me and I cannot contain them. This started as a post for my other blog, and then became THIS. Since I cannot discuss D on the other blog, here I am. I was originally just writing a post on how much I love my boys.
- The Anatomy of a D-Mom.
There is so much more to us D-Moms than meets the eye. Consider this D-Mom class 101. The Brain : Used to calculate radical mathematic equations and factors in order to properly dose a (imperfect, dangerous at times) hormone, all while assessing everyday factors that may change at any moment. Normally done by a working pancreas.
- Getting To The Bottom, of The Bottom Issue.
Why must these things take so long. Today Justice's CDE let me know that his celiac and thyroid panel were all normal yay or crap? We still have NO idea what is causing the tummy issues. Lows are better, and so is gas, but now we have stool issues. TMI ahead. The other night my baby was in the bathroom for almost 2 hrs hunched over in pain. His stool looks like oatmeal or as my homegirl Wendy put it, "sawdust". Sometimes you can see the food is not digested.
JUSTICE'S MISBEHAVING PANCREAS It Changes Things.
| SATURDAY, DECEMBER 17, 2011
I'm sure you've noticed. I've noticed. He's noticed. So has she. I assume they can see it too. It started on October 21, 2008. The devasting news that MY child, my just turned 6 a few days before, my bubbly, energetic, funny, active, healthy, son was in DKA. It wasn't just the flu, but something more dangerous and life altering than I could ever imagine. Our vacation of a week turned into 2 weeks in the hospital learning how to keep our child alive.
- JDRF Walk 2011
How did I miss posting on this?! I swear there are NOT enough hours in the day. As many of you know this was my first year as the JDRF Family Walk chair and it was amazing! I truly adore our JDRF chapter, they have done so much for my family, I love them. To go into full deets would take forever so here's the short story. We had about 20 walkers and met our goal of $1000! I am very happy with that. Our chapter together raised $560,000!! That makes my heart swell with happiness!
JUSTICE'S MISBEHAVING PANCREAS A New Level Of Low, at The Endo.
| WEDNESDAY, DECEMBER 14, 2011
Today was our 4 month endo appointment for D-Boy (Jus), and follow up appointment for Ribbon (Syn). I was actually anxious. Not like A1C anxious, but "PLEASE HELP US." Anxious. The lows. They're kicking his (our) ass. I haven't seen a meal spike in 2 weeks. I haven't seen a low come up in appropriate time, in 2 weeks. I haven't seen the back of my eye lids, in 2 weeks. The gas.well y'all remember we discussed the gas on my last post. So we went in. Ready as ever.
- I Dont Wanna Play This Game!
He's low. I'm low! Babe, low! Mrs. Newell, he's low AGAIN. Dexcom arrow down. His CGM said two arrows down Alexis. STOP TREAT REPEAT. Almost 5 days of this. I've done basal changes, I have done temp basals of minus 50%, and still low. If not low, just not spiking at all. Which is great! But unusual. How can he eat 60gc and have a reduced basal, and still NOT be over 85?! We never honeymooned. Never will. Labs show he produces no insulin. Miracle? Ill take that, if its a true CURE. But this?
- The Lonely Shell.
*WARNING NOT A GLITTERY, UNICORN PISSING RAINBOWS KINDA POST* Sigh. Where to begin? First I feel so bad that I haven't written in almost 2 weeks nor have I been able to comment on blogs. I'm reading as much as I can. But it seems like time is just not on my side. I am back to working full time now. 8am to 4pm. 5 days a week. Opposite schedule of my hubby. Which makes for ZERO time together. ZERO me time. ZERO breaks. ZERO sleep! Well we never really get a break do we now.anyway.
- World Diabetes Day 2011. Blue Heels.
First let me say HAPPY BIRTHDAY!!!! To the man who saved my sons life, and countless others. Dr. Bantings the medical marvel who discovered insulin, his birthday is today. That's the significance of this date for World Diabetes Day. While insulin is NOT a cure, it is a means to live. Without it Justice would DIE. That's right. No exaggeration. Everyone does different things to celebrate this day. My house is lit up in Blue, with a Blue ribbon in the window.
JUSTICE'S MISBEHAVING PANCREAS 28. #DBlog Day 2011
| WEDNESDAY, NOVEMBER 9, 2011
Today's post is brought to you by the number 28. This was the number that showed up on the meter when my husband picked up J from school. Confirmed by a 77 arrow down that J apparently ignored. But today isn't about that low, or the others we have seen this week. Today is #Dblog Day! For more info on that click here. So I wanted to partake in the scrap book, and I still may but its not done yet due to me now working fulltime, and D kick my ass! So I'm going with the blog prompt. Which is.
- Diabetes Awareness Month, Starts at Home.
This post was written 2 weeks ago, but saved for today in honor of T1 Day. This post has grammatical errors, punctuation errors and all kinds of mess. Some of it was written at 6am, some at 4pm, just when I felt inspired. So please forgive the mess. I decided to honor Justice (and all other PWD/CWD) this week for his Diaversary, which was Friday the 21st, by mimicing his "life" so to speak.
- Our Diaversary, and Theirs.
Today marks 3 years of Justice having Type 1 Diabetes.It also marks 3 years of Justin having Type 1 Diabetes.We didn't know each other then.But on the same day, in the same year, both my family, and Lora's family, were going through an event that would forever change our lives.I can recall just about every nano second of the 72 hours leading up to my J's diagnosis, as well as the actual day.I
JUSTICE'S MISBEHAVING PANCREAS 9 Years Ago Today.
| WEDNESDAY, OCTOBER 12, 2011
I gave birth to my first born. I learned what it was to truly love without limits. I found the missing piece of my heart. I found strength, and courage his eyes. I knew I was meant to give birth to him. I knew he would was destined for greatness. I realized that my heart would forever travel on the outside of my body, as I am now a mother. Justice has tought me more in his 9 years than I have learned in all my 29. I have said this before but I know its true so ill say it again.
JUSTICE'S MISBEHAVING PANCREAS Tomorrow's The Day- Prayers Appreciated.
| WEDNESDAY, OCTOBER 12, 2011
First I want to say I'm sorry to all my fellow bloggers for my lack of commenting, and not reading as much as I usually do. Life has been hectic! I post on here and keep it moving. I miss you all, and hope life has been nothing but beautiful for you all. Tomorrow is the day Synsyre will undergo testing to determine if he needs to start hormone therapy or not. This will also give us an official (hopefully not!) diagnosis of CAH.
- New Look, New Name,
Do you see it? Don't you love it?!Thanks Thanks to Bill a type 3, who I wish had a site I could link to, I now have this amazing new logo, custom made just for me! Drawn in the likeness of both my boys!!Justice Justice is D-Boy, Synsyre is Ribbon. Pic is in that order as well, left to right.And HUGE thanks to my girl Tiffy, who tolerates all my crazy, I now have a new kick ass header, background and button! Love you girly, thank you!!!I
- Lucky 3 Winners!!!!
Thanks everyone for participating my very awesome and special Tallygear giveaway! I want to send a BIG, HUGE thank you to Donna for allowing me to share the awesomeness that is Tallygear with my readers, and her generosity in giving away not just 1 but 3 prizes! So without further to do (in my best Carlito Brigante voice), here are our winners!! *I I used Random.org to generate all winners. WINNER #1 who will be taking home Tummietote with window and matching headband is.Nicole from We Cara Lot!!
- TallyGear and Justice Presents.
No, no not the winners of the giveaway yet. 2 more days so get to entering! Top left corner, click enter to win!). Today we are unveiling a NEW product from Tallygear, one that Justice and I had a hand in. Cool right?! Ok so Justice wears his Tummietotes for school, he puts in it; pump, Dex, candy, cell, and meter (or meter goes in pocked depending on his "mood"). The thing is we live in Vegas, its still in the flipping 80s and 90s here!
- NO D Day 2011-Shoes & Smiles
So today is the day where we don't discuss anything D related. None at all! I wish I could link to the amazing creator of this day, but my app is down and I'm posting via email. So Ima just have to give him a HUGE shoutout! George of Ninjabetic is behind this amazeballs idea! So thank you G for giving me a reason to discuss something else besides.ya know.here it goes. Today I wanna talk about some thing that makes me smile. Makes me feel good no matter what's going on.
- NO D Day 2011-Shoes & Smiles
-- Original Message -- Subject: NO D Day 2011-Shoes & Smiles From: "A.N" " To: My Blog CC: So today is the day where we don't discuss anything D related. None at all! I wish I could link to the amazing creator of this day, but my app is down and I'm posting via email. So Ima just have to give him a HUGE shoutout! George of Ninjabetic is behind this amazeballs idea! So thank you G for giving me a reason to discuss something else besides.ya know.here it goes.
- Wordless Wednesday Support Swag
- Thank God For Synsyre.
He keeps me smiling. Always
- For The New Travelers.
There is a road many know little of. One they never think they will travel. It's bumpy, and dark, and filled with chaos. The trees are overgrown and the animals run wild. You cannot see for sure where you stand; you only know this was not in your plans. It is not a route you wish for, but one that decides it's your path. I used to feel alone traveling this road, wondering who else was headed where I was. As years passed the road became clearer. The sun started to shine.
JUSTICE'S MISBEHAVING PANCREAS Best. Friday. Giveaway. Ever!
| THURSDAY, SEPTEMBER 29, 2011
Ok I'm a lil bias. I'm hosting a giveaway! Not just any giveaway.are you ready?? A TALLYGEAR GIVEAWAY!!!!(Tallygear.com Tallygear.com for full product list and info). Ok so as you know, I am a loyal (well Justice but whatever) Tallygear customer. We love love love and ONLY use Tallygear to hold Justice's Ping, Dexcom, fast acting sugars, and cell phone. He uses it at home, school, pool, park, wherever. Tallygear is not only functional but soooo cool!